The Nordic medical birth registers – a potential goldmine for clinical research
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The Nordic medical birth registers – a potential goldmine for clinical research. / Langhoff-Roos, Jens; Krebs, Lone; Klungsøyr, Kari; Bjarnadottir, Ragnheidur I.; Källen, Karin; Tapper, Anna Maija; Jakobsson, Maija; Børdahl, Per E.; Lindqvist, Pelle G; Gottvall, Karin; Colmorn, Lotte Berdiin; Gissler, Mika.
I: Acta Obstetricia et Gynecologica Scandinavica, Bind 93, Nr. 2, 02.2014, s. 132-7.Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › fagfællebedømt
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TY - JOUR
T1 - The Nordic medical birth registers – a potential goldmine for clinical research
AU - Langhoff-Roos, Jens
AU - Krebs, Lone
AU - Klungsøyr, Kari
AU - Bjarnadottir, Ragnheidur I.
AU - Källen, Karin
AU - Tapper, Anna Maija
AU - Jakobsson, Maija
AU - Børdahl, Per E.
AU - Lindqvist, Pelle G
AU - Gottvall, Karin
AU - Colmorn, Lotte Berdiin
AU - Gissler, Mika
N1 - © 2013 Nordic Federation of Societies of Obstetrics and Gynecology.
PY - 2014/2
Y1 - 2014/2
N2 - The Nordic medical birth registers have long been used for valuable clinical research. Their collection of data for more than four decades offers unusual possibilities for research across generations. At the same time, serum and blotting paper blood samples have been stored from most neonates. Two large cohorts (approximately 100 000 births) in Denmark and Norway have been described by questionnaires, interviews and collection of biological samples (blood, urine and milk teeth), as well as a systematic prospective follow-up of the offspring. National patient registers provide information on preceding, underlying and present health problems of the parents and their offspring. Researchers may, with permission from the national authorities, obtain access to individualized or anonymized data from the registers and tissue-banks. These data allow for multivariate analyses but their usefulness depends on knowledge of the specific registers and biological sample banks and on proper validation of the registers.
AB - The Nordic medical birth registers have long been used for valuable clinical research. Their collection of data for more than four decades offers unusual possibilities for research across generations. At the same time, serum and blotting paper blood samples have been stored from most neonates. Two large cohorts (approximately 100 000 births) in Denmark and Norway have been described by questionnaires, interviews and collection of biological samples (blood, urine and milk teeth), as well as a systematic prospective follow-up of the offspring. National patient registers provide information on preceding, underlying and present health problems of the parents and their offspring. Researchers may, with permission from the national authorities, obtain access to individualized or anonymized data from the registers and tissue-banks. These data allow for multivariate analyses but their usefulness depends on knowledge of the specific registers and biological sample banks and on proper validation of the registers.
KW - Adult
KW - Biological Specimen Banks
KW - Biomedical Research
KW - Birth Certificates
KW - Databases as Topic
KW - Female
KW - Humans
KW - Infant, Newborn
KW - Male
KW - Maternal Mortality
KW - Perinatal Mortality
KW - Pregnancy
KW - Registries
KW - Scandinavian and Nordic Countries
KW - Journal Article
U2 - 10.1111/aogs.12302
DO - 10.1111/aogs.12302
M3 - Journal article
C2 - 24237585
VL - 93
SP - 132
EP - 137
JO - Acta Obstetricia et Gynecologica Scandinavica
JF - Acta Obstetricia et Gynecologica Scandinavica
SN - 0001-6349
IS - 2
ER -
ID: 179628550