TY - JOUR

T1 - Patient-reported outcome measures for hip-related pain

T2 - a review of the available evidence and a consensus statement from the International Hip-related Pain Research Network, Zurich 2018

AU - Impellizzeri, Franco M

AU - Jones, Denise M

AU - Griffin, Damian

AU - Harris-Hayes, Marcie

AU - Thorborg, Kristian

AU - Crossley, Kay M

AU - Reiman, Michael P

AU - Scholes, Mark James

AU - Ageberg, Eva

AU - Agricola, Rintje

AU - Bizzini, Mario

AU - Bloom, Nancy

AU - Casartelli, Nicola C

AU - Diamond, Laura E

AU - Dijkstra, Hendrik Paulus

AU - Di Stasi, Stephanie

AU - Drew, Michael

AU - Friedman, Daniel Jonah

AU - Freke, Matthew

AU - Gojanovic, Boris

AU - Heerey, Joshua J

AU - Hölmich, Per

AU - Hunt, Michael A

AU - Ishøi, Lasse

AU - Kassarjian, Ara

AU - King, Matthew

AU - Lawrenson, Peter R

AU - Leunig, Michael

AU - Lewis, Cara L

AU - Warholm, Kristian Marstrand

AU - Mayes, Sue

AU - Moksnes, Håvard

AU - Mosler, Andrea Britt

AU - Risberg, May Arna

AU - Semciw, Adam

AU - Serner, Andreas

AU - van Klij, Pim

AU - Wörner, Tobias

AU - Kemp, Joanne

N1 - © Author(s) (or their employer(s)) 2020. No commercial re-use. See rights and permissions. Published by BMJ.

PY - 2020/7

Y1 - 2020/7

N2 - Hip-related pain is a well-recognised complaint among active young and middle-aged active adults. People experiencing hip-related disorders commonly report pain and reduced functional capacity, including difficulties in executing activities of daily living. Patient-reported outcome measures (PROMs) are essential to accurately examine and compare the effects of different treatments on disability in those with hip pain. In November 2018, 38 researchers and clinicians working in the field of hip-related pain met in Zurich, Switzerland for the first International Hip-related Pain Research Network meeting. Prior to the meeting, evidence summaries were developed relating to four prioritised themes. This paper discusses the available evidence and consensus process from which recommendations were made regarding the appropriate use of PROMs to assess disability in young and middle-aged active adults with hip-related pain. Our process to gain consensus had five steps: (1) systematic review of systematic reviews; (2) preliminary discussion within the working group; (3) update of the more recent high-quality systematic review and examination of the psychometric properties of PROMs according to established guidelines; (4) formulation of the recommendations considering the limitations of the PROMs derived from the examination of their quality; and (5) voting and consensus. Out of 102 articles retrieved, 6 systematic reviews were selected and assessed for quality according to AMSTAR 2 (A MeaSurement Tool to Assess systematic Reviews). Two showed moderate quality. We then updated the most recent review. The updated literature search resulted in 10 additional studies that were included in the qualitative synthesis. The recommendations based on evidence summary and PROMs limitations were presented at the consensus meeting. The group makes the following recommendations: (1) the Hip and Groin Outcome Score (HAGOS) and the International Hip Outcome Tool (iHOT) instruments (long and reduced versions) are the most appropriate PROMs to use in young and middle-aged active adults with hip-related pain; (2) more research is needed into the utility of the HAGOS and the iHOT instruments in a non-surgical treatment context; and (3) generic quality of life measures such as the EuroQoL-5 Dimension Questionnaire and the Short Form Health Survey-36 may add value for researchers and clinicians in this field. We conclude that as none of the instruments shows acceptable quality across various psychometric properties, more methods studies are needed to further evaluate the validity of these PROMS-the HAGOS and iHOT-as well as the other (currently not recommended) PROMS.

AB - Hip-related pain is a well-recognised complaint among active young and middle-aged active adults. People experiencing hip-related disorders commonly report pain and reduced functional capacity, including difficulties in executing activities of daily living. Patient-reported outcome measures (PROMs) are essential to accurately examine and compare the effects of different treatments on disability in those with hip pain. In November 2018, 38 researchers and clinicians working in the field of hip-related pain met in Zurich, Switzerland for the first International Hip-related Pain Research Network meeting. Prior to the meeting, evidence summaries were developed relating to four prioritised themes. This paper discusses the available evidence and consensus process from which recommendations were made regarding the appropriate use of PROMs to assess disability in young and middle-aged active adults with hip-related pain. Our process to gain consensus had five steps: (1) systematic review of systematic reviews; (2) preliminary discussion within the working group; (3) update of the more recent high-quality systematic review and examination of the psychometric properties of PROMs according to established guidelines; (4) formulation of the recommendations considering the limitations of the PROMs derived from the examination of their quality; and (5) voting and consensus. Out of 102 articles retrieved, 6 systematic reviews were selected and assessed for quality according to AMSTAR 2 (A MeaSurement Tool to Assess systematic Reviews). Two showed moderate quality. We then updated the most recent review. The updated literature search resulted in 10 additional studies that were included in the qualitative synthesis. The recommendations based on evidence summary and PROMs limitations were presented at the consensus meeting. The group makes the following recommendations: (1) the Hip and Groin Outcome Score (HAGOS) and the International Hip Outcome Tool (iHOT) instruments (long and reduced versions) are the most appropriate PROMs to use in young and middle-aged active adults with hip-related pain; (2) more research is needed into the utility of the HAGOS and the iHOT instruments in a non-surgical treatment context; and (3) generic quality of life measures such as the EuroQoL-5 Dimension Questionnaire and the Short Form Health Survey-36 may add value for researchers and clinicians in this field. We conclude that as none of the instruments shows acceptable quality across various psychometric properties, more methods studies are needed to further evaluate the validity of these PROMS-the HAGOS and iHOT-as well as the other (currently not recommended) PROMS.

KW - Activities of Daily Living

KW - Arthralgia/physiopathology

KW - Hip/physiopathology

KW - Humans

KW - Middle Aged

KW - Patient Reported Outcome Measures

KW - Psychometrics

KW - Quality of Life

KW - Young Adult

U2 - 10.1136/bjsports-2019-101456

DO - 10.1136/bjsports-2019-101456

M3 - Journal article

C2 - 32066573

VL - 54

SP - 848

EP - 857

JO - British Journal of Sports Medicine

JF - British Journal of Sports Medicine

SN - 0306-3674

IS - 14

ER -