TY - JOUR

T1 - Reasons for non-participation in cancer rehabilitation

T2 - a scoping literature review

AU - Erlik, Mikala

AU - Timm, Helle

AU - Larsen, Anders Thyge Steen

AU - Quist, Morten

N1 - Publisher Copyright: © The Author(s) 2024.

PY - 2024

Y1 - 2024

N2 - Background: Rehabilitation plays an important role in addressing the many challenges of living with cancer, but a large proportion of people with cancer do not participate in available cancer rehabilitation. Hence, reasons for non-participation in cancer rehabilitation need to be explored. Objective: The present study undertakes a scoping review of research examining reasons for non-participation in cancer rehabilitation among people with cancer. Design: A systematic search was conducted in PubMed, Scopus and CINAHL for articles published until July 2023. Included studies were hand searched for relevant references and citations. Eligibility criteria: Method: Studies with qualitative, quantitative or mixed-method design. Population: Studies targeting adults (> 18) living with cancer, not participating in rehabilitation. Program type: The review included all studies defining program as rehabilitation but excluded clinical trials. Outcome: Studies examining reasons for non-participation in available rehabilitation. Data extraction: The extracted data included author(s)/year of publication, aim, population, information, rehabilitation type and main reasons for non-participation. Results: A total of nine studies were included (n = 3 quantitative, n = 2 qualitative, n = 4 mixed methods). Reasons for non-participation included physical, psychosocial and practical aspects. The main reason across studies was ‘no need for public support’ related to receiving sufficient support from family and friends. All studies focused on individual reasons, and structural conditions were rarely present. Conclusion: Research within this field is sparse. Future research should explore how individual reasons for non-participation relate to structural conditions, especially among people in socially disadvantaged positions living with cancer.

AB - Background: Rehabilitation plays an important role in addressing the many challenges of living with cancer, but a large proportion of people with cancer do not participate in available cancer rehabilitation. Hence, reasons for non-participation in cancer rehabilitation need to be explored. Objective: The present study undertakes a scoping review of research examining reasons for non-participation in cancer rehabilitation among people with cancer. Design: A systematic search was conducted in PubMed, Scopus and CINAHL for articles published until July 2023. Included studies were hand searched for relevant references and citations. Eligibility criteria: Method: Studies with qualitative, quantitative or mixed-method design. Population: Studies targeting adults (> 18) living with cancer, not participating in rehabilitation. Program type: The review included all studies defining program as rehabilitation but excluded clinical trials. Outcome: Studies examining reasons for non-participation in available rehabilitation. Data extraction: The extracted data included author(s)/year of publication, aim, population, information, rehabilitation type and main reasons for non-participation. Results: A total of nine studies were included (n = 3 quantitative, n = 2 qualitative, n = 4 mixed methods). Reasons for non-participation included physical, psychosocial and practical aspects. The main reason across studies was ‘no need for public support’ related to receiving sufficient support from family and friends. All studies focused on individual reasons, and structural conditions were rarely present. Conclusion: Research within this field is sparse. Future research should explore how individual reasons for non-participation relate to structural conditions, especially among people in socially disadvantaged positions living with cancer.

KW - Health inequities

KW - Patient acceptance of health care

KW - Patient participation

KW - Refusal to participate

KW - Rehabilitation

KW - Social support

U2 - 10.1007/s00520-024-08553-9

DO - 10.1007/s00520-024-08553-9

M3 - Review

C2 - 38743121

AN - SCOPUS:85193206845

VL - 32

JO - Supportive Care in Cancer

JF - Supportive Care in Cancer

SN - 0941-4355

IS - 6

M1 - 346

ER -