TY - JOUR

T1 - Patients with rectal cancer are satisfied with in-hospital communication despite insufficient information regarding treatment alternatives and potential side-effects

AU - Walming, Sofie

AU - Asplund, Dan

AU - Block, Mattias

AU - Bock, David

AU - Gonzalez, Elisabeth

AU - Rosander, Carina

AU - Rosenberg, Jacob

AU - Angenete, Eva

PY - 2018/10/3

Y1 - 2018/10/3

N2 - Aim: Patients with rectal cancer may undergo treatment such as surgery and (chemo)radiotherapy. Before treatment, patients are informed of different options and possible side-effects. The aim of the study was to evaluate the patients’ experience of communication with healthcare personnel at time of diagnosis and after one year. Method: A total of 1085 patients from Denmark and Sweden were included. They answered a detailed questionnaire at diagnosis and at the one year follow-up. Clinical data were retrieved from national quality registries. Results: Response rates were 87% at baseline and 74% at one year. Overall the patients were very satisfied with the communication with healthcare personnel. However, some patients reported insufficient information regarding treatment options and possible side-effects. Only 32% (335/1050) and 24% (248/1053), respectively, stated that they were informed about possible sexual and urinary dysfunction before treatment. Conclusions: Even though patients felt that they received insufficient information regarding side-effects on sexual and urinary function, they were generally satisfied with the communication with the healthcare personnel. Since overall satisfaction with the level of information was very high, it is unlikely that further information to patients with rectal cancer in the surgical and oncological settings will improve satisfaction with communication.

AB - Aim: Patients with rectal cancer may undergo treatment such as surgery and (chemo)radiotherapy. Before treatment, patients are informed of different options and possible side-effects. The aim of the study was to evaluate the patients’ experience of communication with healthcare personnel at time of diagnosis and after one year. Method: A total of 1085 patients from Denmark and Sweden were included. They answered a detailed questionnaire at diagnosis and at the one year follow-up. Clinical data were retrieved from national quality registries. Results: Response rates were 87% at baseline and 74% at one year. Overall the patients were very satisfied with the communication with healthcare personnel. However, some patients reported insufficient information regarding treatment options and possible side-effects. Only 32% (335/1050) and 24% (248/1053), respectively, stated that they were informed about possible sexual and urinary dysfunction before treatment. Conclusions: Even though patients felt that they received insufficient information regarding side-effects on sexual and urinary function, they were generally satisfied with the communication with the healthcare personnel. Since overall satisfaction with the level of information was very high, it is unlikely that further information to patients with rectal cancer in the surgical and oncological settings will improve satisfaction with communication.

UR - http://www.scopus.com/inward/record.url?scp=85049608790&partnerID=8YFLogxK

U2 - 10.1080/0284186X.2018.1484158

DO - 10.1080/0284186X.2018.1484158

M3 - Journal article

C2 - 29989469

AN - SCOPUS:85049608790

VL - 57

SP - 1311

EP - 1317

JO - Acta Oncologica

JF - Acta Oncologica

SN - 1100-1704

IS - 10

ER -