Parental response to severe or lethal prenatal diagnosis: a systematic review of qualitative studies
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Parental response to severe or lethal prenatal diagnosis : a systematic review of qualitative studies. / Lou, Stina; Jensen, Lotte Groth; Petersen, Olav Bjørn; Vogel, Ida; Hvidman, Lone; Møller, Anne; Nielsen, Camilla Palmhøj.
In: Prenatal Diagnosis, Vol. 37, No. 8, 2017, p. 731-743.Research output: Contribution to journal › Review › Research › peer-review
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TY - JOUR
T1 - Parental response to severe or lethal prenatal diagnosis
T2 - a systematic review of qualitative studies
AU - Lou, Stina
AU - Jensen, Lotte Groth
AU - Petersen, Olav Bjørn
AU - Vogel, Ida
AU - Hvidman, Lone
AU - Møller, Anne
AU - Nielsen, Camilla Palmhøj
N1 - © 2017 John Wiley & Sons, Ltd.
PY - 2017
Y1 - 2017
N2 - OBJECTIVE: A severe or lethal prenatal diagnosis places great demands on prospective parents, who face choices of far-reaching consequences, such as continuing or terminating the pregnancy. How best to support these parents is a clinical challenge. This systematic review aimed to identify and synthesize the qualitative evidence regarding prospective parents' responses to such prenatal diagnoses.METHODS: Following PRISMA guidelines, four databases were systematically searched and 28 studies met the inclusion criteria. Thematic analysis guided data extraction and synthesis of findings. The Confidence in the Evidence for Reviews of Qualitative research assessment tool was utilized to assess confidence in the findings.RESULTS: Prospective parents experienced multiple losses, for example, of the healthy child, normal pregnancy and envisioned future. After diagnosis, they requested timely and reliable information and empathetic continued interaction with clinicians. Prospective parents who continued the pregnancy wished to be acknowledged as parents and engaged in planning to obtain a sense of meaning and control. Selective disclosure and concerns about negative responses were issues both for the parents who terminated and those who continued a pregnancy.CONCLUSION: Clinicians can support parental coping following a severe prenatal diagnosis through continued dialogue and collaboration. Further research is needed on the experiences of parents who choose to terminate a pregnancy following prenatal diagnosis. © 2017 John Wiley & Sons, Ltd.
AB - OBJECTIVE: A severe or lethal prenatal diagnosis places great demands on prospective parents, who face choices of far-reaching consequences, such as continuing or terminating the pregnancy. How best to support these parents is a clinical challenge. This systematic review aimed to identify and synthesize the qualitative evidence regarding prospective parents' responses to such prenatal diagnoses.METHODS: Following PRISMA guidelines, four databases were systematically searched and 28 studies met the inclusion criteria. Thematic analysis guided data extraction and synthesis of findings. The Confidence in the Evidence for Reviews of Qualitative research assessment tool was utilized to assess confidence in the findings.RESULTS: Prospective parents experienced multiple losses, for example, of the healthy child, normal pregnancy and envisioned future. After diagnosis, they requested timely and reliable information and empathetic continued interaction with clinicians. Prospective parents who continued the pregnancy wished to be acknowledged as parents and engaged in planning to obtain a sense of meaning and control. Selective disclosure and concerns about negative responses were issues both for the parents who terminated and those who continued a pregnancy.CONCLUSION: Clinicians can support parental coping following a severe prenatal diagnosis through continued dialogue and collaboration. Further research is needed on the experiences of parents who choose to terminate a pregnancy following prenatal diagnosis. © 2017 John Wiley & Sons, Ltd.
KW - Congenital Abnormalities
KW - Humans
KW - Parents/psychology
KW - Prenatal Diagnosis/psychology
U2 - 10.1002/pd.5093
DO - 10.1002/pd.5093
M3 - Review
C2 - 28614902
VL - 37
SP - 731
EP - 743
JO - Prenatal Diagnosis
JF - Prenatal Diagnosis
SN - 0197-3851
IS - 8
ER -
ID: 227054182