TY - JOUR

T1 - Low degree of patient involvement in contemporary surgical research

T2 - A scoping review

AU - Mojadeddi, Z. M.

AU - Öberg, S.

AU - Rosenberg, J.

N1 - Publisher Copyright: © 2023 Journal of Postgraduate Medicine.

PY - 2023

Y1 - 2023

N2 - Background: Patient and public involvement in research was introduced a few decades ago. However, there is still a lack of knowledge of the degree of patient involvement, particularly in surgical research. The aim of this review was to characterize the use of patient/public involvement in contemporary surgical research and to describe how patients were involved, if they gained authorships, and which countries studies came from. Methods: In this scoping review, original studies and reviews about surgery were included that had patient/ public involvement regarding study planning, conducting the study, and/or revising the manuscript. Screening was performed in the issues from 2021 of five general medicine journals with high‑impact factors, also classically called “the big five,” and in the ten surgical journals with the highest impact factor. Results: Of the 808 studies, 12 studies from three journals had patient involvement, corresponding to 1.7%. Patients were involved as participants in nine of the studies either in the designing of the study and/or in revising or approving the protocol; and in four studies in revising and/or approving the manuscript. One patient fulfilled the ICMJE authorship criteria and received a group authorship. Studies with patient involvement originated from six countries namely, Australia, Canada, Netherlands, Norway, USA, and UK; with five studies from the UK. Conclusion: Patient involvement is very low in contemporary surgical research. It is primarily in the study planning phase, authorship is almost non‑existent and few countries publish such studies.

AB - Background: Patient and public involvement in research was introduced a few decades ago. However, there is still a lack of knowledge of the degree of patient involvement, particularly in surgical research. The aim of this review was to characterize the use of patient/public involvement in contemporary surgical research and to describe how patients were involved, if they gained authorships, and which countries studies came from. Methods: In this scoping review, original studies and reviews about surgery were included that had patient/ public involvement regarding study planning, conducting the study, and/or revising the manuscript. Screening was performed in the issues from 2021 of five general medicine journals with high‑impact factors, also classically called “the big five,” and in the ten surgical journals with the highest impact factor. Results: Of the 808 studies, 12 studies from three journals had patient involvement, corresponding to 1.7%. Patients were involved as participants in nine of the studies either in the designing of the study and/or in revising or approving the protocol; and in four studies in revising and/or approving the manuscript. One patient fulfilled the ICMJE authorship criteria and received a group authorship. Studies with patient involvement originated from six countries namely, Australia, Canada, Netherlands, Norway, USA, and UK; with five studies from the UK. Conclusion: Patient involvement is very low in contemporary surgical research. It is primarily in the study planning phase, authorship is almost non‑existent and few countries publish such studies.

KW - Patient and public involvement

KW - public health

KW - surgery

U2 - 10.4103/jpgm.jpgm_83_23

DO - 10.4103/jpgm.jpgm_83_23

M3 - Review

C2 - 37357485

AN - SCOPUS:85165220909

VL - 69

SP - 153

EP - 158

JO - Journal of Postgraduate Medicine

JF - Journal of Postgraduate Medicine

SN - 0022-3859

IS - 3

ER -