International Severe Asthma Registry: Mission Statement

Research output: Contribution to journal › Review › Research › peer-review

Standard

International Severe Asthma Registry : Mission Statement. / Canonica, G. Walter; Alacqua, Marianna; Altraja, Alan; Backer, Vibeke; Bel, Elisabeth; Bjermer, Leif; Bjornsdottir, Unnur; Bourdin, Arnaud; Brusselle, Guy G.; Christoff, George C.; Cosio, Borja G.; Costello, Richard W.; FitzGerald, J. Mark; Gibson, Peter G.; Heaney, Liam G.; Heffler, Enrico; Hew, Mark; Iwanaga, Takashi; Jones, Rupert C.; Siyue, Mariko Koh; Rhee, Chin Kook; Lehmann, Sverre; Lehtimäki, Lauri A.; Ludviksdottir, Dora; Maitland-van der Zee, Anke Hilse; Menzies-Gow, Andrew N.; Papadopoulos, Nikolaos G.; Plaza, Vicente; Perez de Llano, Luis; Peters, Matthew; Porsbjerg, Celeste M.; Sadatsafavi, Mohsen; Cho, You Sook; Tohda, Yuji; Tran, Trung N.; Wang, Eileen; Zangrilli, James; Bulathsinhala, Lakmini; Carter, Victoria A.; Chaudhry, Isha; Eleangovan, Neva; Hosseini, Naeimeh; Le, Thao L.; Murray, Ruth B.; Price, Chris A.; Price, David B.; The ISAR Study Group.

In: Chest, Vol. 157, No. 4, 2020, p. 805-814.

Research output: Contribution to journal › Review › Research › peer-review

Harvard

Canonica, GW, Alacqua, M, Altraja, A, Backer, V, Bel, E, Bjermer, L, Bjornsdottir, U, Bourdin, A, Brusselle, GG, Christoff, GC, Cosio, BG, Costello, RW, FitzGerald, JM, Gibson, PG, Heaney, LG, Heffler, E, Hew, M, Iwanaga, T, Jones, RC, Siyue, MK, Rhee, CK, Lehmann, S, Lehtimäki, LA, Ludviksdottir, D, Maitland-van der Zee, AH, Menzies-Gow, AN, Papadopoulos, NG, Plaza, V, Perez de Llano, L, Peters, M, Porsbjerg, CM, Sadatsafavi, M, Cho, YS, Tohda, Y, Tran, TN, Wang, E, Zangrilli, J, Bulathsinhala, L, Carter, VA, Chaudhry, I, Eleangovan, N, Hosseini, N, Le, TL, Murray, RB, Price, CA, Price, DB & The ISAR Study Group 2020, 'International Severe Asthma Registry: Mission Statement', Chest, vol. 157, no. 4, pp. 805-814. https://doi.org/10.1016/j.chest.2019.10.051

APA

Canonica, G. W., Alacqua, M., Altraja, A., Backer, V., Bel, E., Bjermer, L., Bjornsdottir, U., Bourdin, A., Brusselle, G. G., Christoff, G. C., Cosio, B. G., Costello, R. W., FitzGerald, J. M., Gibson, P. G., Heaney, L. G., Heffler, E., Hew, M., Iwanaga, T., Jones, R. C., ... The ISAR Study Group (2020). International Severe Asthma Registry: Mission Statement. Chest, 157(4), 805-814. https://doi.org/10.1016/j.chest.2019.10.051

Vancouver

Canonica GW, Alacqua M, Altraja A, Backer V, Bel E, Bjermer L et al. International Severe Asthma Registry: Mission Statement. Chest. 2020;157(4):805-814. https://doi.org/10.1016/j.chest.2019.10.051

Author

Canonica, G. Walter ; Alacqua, Marianna ; Altraja, Alan ; Backer, Vibeke ; Bel, Elisabeth ; Bjermer, Leif ; Bjornsdottir, Unnur ; Bourdin, Arnaud ; Brusselle, Guy G. ; Christoff, George C. ; Cosio, Borja G. ; Costello, Richard W. ; FitzGerald, J. Mark ; Gibson, Peter G. ; Heaney, Liam G. ; Heffler, Enrico ; Hew, Mark ; Iwanaga, Takashi ; Jones, Rupert C. ; Siyue, Mariko Koh ; Rhee, Chin Kook ; Lehmann, Sverre ; Lehtimäki, Lauri A. ; Ludviksdottir, Dora ; Maitland-van der Zee, Anke Hilse ; Menzies-Gow, Andrew N. ; Papadopoulos, Nikolaos G. ; Plaza, Vicente ; Perez de Llano, Luis ; Peters, Matthew ; Porsbjerg, Celeste M. ; Sadatsafavi, Mohsen ; Cho, You Sook ; Tohda, Yuji ; Tran, Trung N. ; Wang, Eileen ; Zangrilli, James ; Bulathsinhala, Lakmini ; Carter, Victoria A. ; Chaudhry, Isha ; Eleangovan, Neva ; Hosseini, Naeimeh ; Le, Thao L. ; Murray, Ruth B. ; Price, Chris A. ; Price, David B. ; The ISAR Study Group. / International Severe Asthma Registry : Mission Statement. In: Chest. 2020 ; Vol. 157, No. 4. pp. 805-814.

Bibtex

@article{fbb9a07575c74093ab11bcfcdfdebd13,
title = "International Severe Asthma Registry: Mission Statement",
abstract = "Regional and/or national severe asthma registries provide valuable country-specific information. However, they are often limited in scope within the broader definitions of severe asthma, have insufficient statistical power to answer many research questions, lack intraoperability to share lessons learned, and have fundamental differences in data collected, making cross comparisons difficult. What is missing is a worldwide registry which brings all severe asthma data together in a cohesive way, under a single umbrella, based on standardized data collection protocols, permitting data to be shared seamlessly. The International Severe Asthma Registry (ISAR; http://isaregistries.org/) is the first global adult severe asthma registry. It is a joint initiative where national registries (both newly created and preexisting) retain ownership of their own data but open their borders and share data with ISAR for ethically approved research purposes. Its strength comes from collection of patient-level, anonymous, longitudinal, real-life, standardized, high-quality data (using a core set of variables) from countries across the world, combined with organizational structure, database experience, inclusivity/openness, and clinical, academic, and database expertise. This gives ISAR sufficient statistical power to answer important research questions, sufficient data standardization to compare across countries and regions, and the structure and expertise necessary to ensure its continuance and the scientific integrity and clinical applicability of its research. ISAR offers a unique opportunity to implement existing knowledge, generate new knowledge, and identify the unknown, therefore promoting new research. The aim of this commentary is to fully describe how ISAR may improve our understanding of severe asthma.",
keywords = "ISAR, severe asthma",
author = "Canonica, {G. Walter} and Marianna Alacqua and Alan Altraja and Vibeke Backer and Elisabeth Bel and Leif Bjermer and Unnur Bjornsdottir and Arnaud Bourdin and Brusselle, {Guy G.} and Christoff, {George C.} and Cosio, {Borja G.} and Costello, {Richard W.} and FitzGerald, {J. Mark} and Gibson, {Peter G.} and Heaney, {Liam G.} and Enrico Heffler and Mark Hew and Takashi Iwanaga and Jones, {Rupert C.} and Siyue, {Mariko Koh} and Rhee, {Chin Kook} and Sverre Lehmann and Lehtim{\"a}ki, {Lauri A.} and Dora Ludviksdottir and {Maitland-van der Zee}, {Anke Hilse} and Menzies-Gow, {Andrew N.} and Papadopoulos, {Nikolaos G.} and Vicente Plaza and {Perez de Llano}, Luis and Matthew Peters and Porsbjerg, {Celeste M.} and Mohsen Sadatsafavi and Cho, {You Sook} and Yuji Tohda and Tran, {Trung N.} and Eileen Wang and James Zangrilli and Lakmini Bulathsinhala and Carter, {Victoria A.} and Isha Chaudhry and Neva Eleangovan and Naeimeh Hosseini and Le, {Thao L.} and Murray, {Ruth B.} and Price, {Chris A.} and Price, {David B.} and {The ISAR Study Group}",
year = "2020",
doi = "10.1016/j.chest.2019.10.051",
language = "English",
volume = "157",
pages = "805--814",
journal = "Chest",
issn = "0012-3692",
publisher = "American College of Chest Physicians",
number = "4",

}

RIS

TY - JOUR

T1 - International Severe Asthma Registry

T2 - Mission Statement

AU - Canonica, G. Walter

AU - Alacqua, Marianna

AU - Altraja, Alan

AU - Backer, Vibeke

AU - Bel, Elisabeth

AU - Bjermer, Leif

AU - Bjornsdottir, Unnur

AU - Bourdin, Arnaud

AU - Brusselle, Guy G.

AU - Christoff, George C.

AU - Cosio, Borja G.

AU - Costello, Richard W.

AU - FitzGerald, J. Mark

AU - Gibson, Peter G.

AU - Heaney, Liam G.

AU - Heffler, Enrico

AU - Hew, Mark

AU - Iwanaga, Takashi

AU - Jones, Rupert C.

AU - Siyue, Mariko Koh

AU - Rhee, Chin Kook

AU - Lehmann, Sverre

AU - Lehtimäki, Lauri A.

AU - Ludviksdottir, Dora

AU - Maitland-van der Zee, Anke Hilse

AU - Menzies-Gow, Andrew N.

AU - Papadopoulos, Nikolaos G.

AU - Plaza, Vicente

AU - Perez de Llano, Luis

AU - Peters, Matthew

AU - Porsbjerg, Celeste M.

AU - Sadatsafavi, Mohsen

AU - Cho, You Sook

AU - Tohda, Yuji

AU - Tran, Trung N.

AU - Wang, Eileen

AU - Zangrilli, James

AU - Bulathsinhala, Lakmini

AU - Carter, Victoria A.

AU - Chaudhry, Isha

AU - Eleangovan, Neva

AU - Hosseini, Naeimeh

AU - Le, Thao L.

AU - Murray, Ruth B.

AU - Price, Chris A.

AU - Price, David B.

AU - The ISAR Study Group

PY - 2020

Y1 - 2020

N2 - Regional and/or national severe asthma registries provide valuable country-specific information. However, they are often limited in scope within the broader definitions of severe asthma, have insufficient statistical power to answer many research questions, lack intraoperability to share lessons learned, and have fundamental differences in data collected, making cross comparisons difficult. What is missing is a worldwide registry which brings all severe asthma data together in a cohesive way, under a single umbrella, based on standardized data collection protocols, permitting data to be shared seamlessly. The International Severe Asthma Registry (ISAR; http://isaregistries.org/) is the first global adult severe asthma registry. It is a joint initiative where national registries (both newly created and preexisting) retain ownership of their own data but open their borders and share data with ISAR for ethically approved research purposes. Its strength comes from collection of patient-level, anonymous, longitudinal, real-life, standardized, high-quality data (using a core set of variables) from countries across the world, combined with organizational structure, database experience, inclusivity/openness, and clinical, academic, and database expertise. This gives ISAR sufficient statistical power to answer important research questions, sufficient data standardization to compare across countries and regions, and the structure and expertise necessary to ensure its continuance and the scientific integrity and clinical applicability of its research. ISAR offers a unique opportunity to implement existing knowledge, generate new knowledge, and identify the unknown, therefore promoting new research. The aim of this commentary is to fully describe how ISAR may improve our understanding of severe asthma.

AB - Regional and/or national severe asthma registries provide valuable country-specific information. However, they are often limited in scope within the broader definitions of severe asthma, have insufficient statistical power to answer many research questions, lack intraoperability to share lessons learned, and have fundamental differences in data collected, making cross comparisons difficult. What is missing is a worldwide registry which brings all severe asthma data together in a cohesive way, under a single umbrella, based on standardized data collection protocols, permitting data to be shared seamlessly. The International Severe Asthma Registry (ISAR; http://isaregistries.org/) is the first global adult severe asthma registry. It is a joint initiative where national registries (both newly created and preexisting) retain ownership of their own data but open their borders and share data with ISAR for ethically approved research purposes. Its strength comes from collection of patient-level, anonymous, longitudinal, real-life, standardized, high-quality data (using a core set of variables) from countries across the world, combined with organizational structure, database experience, inclusivity/openness, and clinical, academic, and database expertise. This gives ISAR sufficient statistical power to answer important research questions, sufficient data standardization to compare across countries and regions, and the structure and expertise necessary to ensure its continuance and the scientific integrity and clinical applicability of its research. ISAR offers a unique opportunity to implement existing knowledge, generate new knowledge, and identify the unknown, therefore promoting new research. The aim of this commentary is to fully describe how ISAR may improve our understanding of severe asthma.

KW - ISAR

KW - severe asthma

U2 - 10.1016/j.chest.2019.10.051

DO - 10.1016/j.chest.2019.10.051

M3 - Review

C2 - 31838187

AN - SCOPUS:85082137760

VL - 157

SP - 805

EP - 814

JO - Chest

JF - Chest

SN - 0012-3692

IS - 4

ER -

ID: 260244338