TY - JOUR

T1 - European Respiratory Society clinical practice guideline

T2 - palliative care for people with COPD or interstitial lung disease

AU - Janssen, Daisy J A

AU - Bajwah, Sabrina

AU - Boon, Michele Hilton

AU - Coleman, Courtney

AU - Currow, David C

AU - Devillers, Albert

AU - Vandendungen, Chantal

AU - Ekström, Magnus

AU - Flewett, Ron

AU - Greenley, Sarah

AU - Guldin, Mai-Britt

AU - Jácome, Cristina

AU - Johnson, Miriam J

AU - Kurita, Geana Paula

AU - Maddocks, Matthew

AU - Marques, Alda

AU - Pinnock, Hilary

AU - Simon, Steffen T

AU - Tonia, Thomy

AU - Marsaa, Kristoffer

N1 - Copyright ©The authors 2023. For reproduction rights and permissions contact permissions@ersnet.org.

PY - 2023

Y1 - 2023

N2 - There is increased awareness of palliative care needs in people with COPD or interstitial lung disease (ILD). This European Respiratory Society (ERS) task force aimed to provide recommendations for initiation and integration of palliative care into the respiratory care of adult people with COPD or ILD. The ERS task force consisted of 20 members, including representatives of people with COPD or ILD and informal caregivers. Eight questions were formulated, four in the Population, Intervention, Comparison, Outcome format. These were addressed with full systematic reviews and application of Grading of Recommendations Assessment, Development and Evaluation for assessing the evidence. Four additional questions were addressed narratively. An "evidence-to-decision" framework was used to formulate recommendations. The following definition of palliative care for people with COPD or ILD was agreed. A holistic and multidisciplinary person-centred approach aiming to control symptoms and improve quality of life of people with serious health-related suffering because of COPD or ILD, and to support their informal caregivers. Recommendations were made regarding people with COPD or ILD and their informal caregivers: to consider palliative care when physical, psychological, social or existential needs are identified through holistic needs assessment; to offer palliative care interventions, including support for informal caregivers, in accordance with such needs; to offer advance care planning in accordance with preferences; and to integrate palliative care into routine COPD and ILD care. Recommendations should be reconsidered as new evidence becomes available.

AB - There is increased awareness of palliative care needs in people with COPD or interstitial lung disease (ILD). This European Respiratory Society (ERS) task force aimed to provide recommendations for initiation and integration of palliative care into the respiratory care of adult people with COPD or ILD. The ERS task force consisted of 20 members, including representatives of people with COPD or ILD and informal caregivers. Eight questions were formulated, four in the Population, Intervention, Comparison, Outcome format. These were addressed with full systematic reviews and application of Grading of Recommendations Assessment, Development and Evaluation for assessing the evidence. Four additional questions were addressed narratively. An "evidence-to-decision" framework was used to formulate recommendations. The following definition of palliative care for people with COPD or ILD was agreed. A holistic and multidisciplinary person-centred approach aiming to control symptoms and improve quality of life of people with serious health-related suffering because of COPD or ILD, and to support their informal caregivers. Recommendations were made regarding people with COPD or ILD and their informal caregivers: to consider palliative care when physical, psychological, social or existential needs are identified through holistic needs assessment; to offer palliative care interventions, including support for informal caregivers, in accordance with such needs; to offer advance care planning in accordance with preferences; and to integrate palliative care into routine COPD and ILD care. Recommendations should be reconsidered as new evidence becomes available.

KW - Adult

KW - Humans

KW - Caregivers/psychology

KW - Lung Diseases, Interstitial/therapy

KW - Palliative Care

KW - Pulmonary Disease, Chronic Obstructive/diagnosis

KW - Quality of Life

U2 - 10.1183/13993003.02014-2022

DO - 10.1183/13993003.02014-2022

M3 - Journal article

C2 - 37290789

VL - 62

JO - The European respiratory journal

JF - The European respiratory journal

SN - 0903-1936

IS - 2

ER -