Social network trajectory of young adults aged 18-35 years diagnosed with a brain tumour: a protocol for a mixed methods study
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Social network trajectory of young adults aged 18-35 years diagnosed with a brain tumour : a protocol for a mixed methods study. / Guldager, Rikke; Nordentoft, Sara; Bruun-Pedersen, Mette; Hindhede, Anette Lykke.
I: BMJ Open, Bind 13, Nr. 12, e076337, 2023.Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › fagfællebedømt
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TY - JOUR
T1 - Social network trajectory of young adults aged 18-35 years diagnosed with a brain tumour
T2 - a protocol for a mixed methods study
AU - Guldager, Rikke
AU - Nordentoft, Sara
AU - Bruun-Pedersen, Mette
AU - Hindhede, Anette Lykke
N1 - © Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.
PY - 2023
Y1 - 2023
N2 - INTRODUCTION: Research indicates that social networks and roles are disrupted throughout the entire trajectory of someone living with a brain tumour. Young adults aged 18-35 years are particularly vulnerable to such disruption because they are in a process of establishing themselves. Pre-existing social roles and support networks of young adults living with a primary brain tumour may change. This study aims to identify the social networks of young adults aged 18-35 years diagnosed with a primary brain tumour and to map how the diagnosis and disease course affects the social network in relation to changes in relationships and roles over time.METHODS AND ANALYSIS: The study adopts a longitudinal design with a convergent mixed methods approach to describe the social network of young adults. The study utilizes a quantitative approach to social network analysis to measure network size, composition and density and a qualitative approach with interviews to gain insight into young adult's narratives about their network. Network maps will be produced, analysed and all the findings will then be compared and integrated. Interviews and network drawing will take place at the time of the diagnoses, with follow-up interviews 6 and 12 months later. This will shed light on transformations in network compositions and network support over time.ETHICS AND DISSEMINATION: The study has been approved by the Danish Data Protection Agency (ID P-2022-733). Written informed consent will be obtained from all patients. The results will be disseminated through a peer-reviewed journal and reported at local, national and international conferences on brain cancer.
AB - INTRODUCTION: Research indicates that social networks and roles are disrupted throughout the entire trajectory of someone living with a brain tumour. Young adults aged 18-35 years are particularly vulnerable to such disruption because they are in a process of establishing themselves. Pre-existing social roles and support networks of young adults living with a primary brain tumour may change. This study aims to identify the social networks of young adults aged 18-35 years diagnosed with a primary brain tumour and to map how the diagnosis and disease course affects the social network in relation to changes in relationships and roles over time.METHODS AND ANALYSIS: The study adopts a longitudinal design with a convergent mixed methods approach to describe the social network of young adults. The study utilizes a quantitative approach to social network analysis to measure network size, composition and density and a qualitative approach with interviews to gain insight into young adult's narratives about their network. Network maps will be produced, analysed and all the findings will then be compared and integrated. Interviews and network drawing will take place at the time of the diagnoses, with follow-up interviews 6 and 12 months later. This will shed light on transformations in network compositions and network support over time.ETHICS AND DISSEMINATION: The study has been approved by the Danish Data Protection Agency (ID P-2022-733). Written informed consent will be obtained from all patients. The results will be disseminated through a peer-reviewed journal and reported at local, national and international conferences on brain cancer.
KW - Humans
KW - Young Adult
KW - Research Design
KW - Brain Neoplasms
KW - Social Networking
U2 - 10.1136/bmjopen-2023-076337
DO - 10.1136/bmjopen-2023-076337
M3 - Journal article
C2 - 38154884
VL - 13
JO - BMJ Open
JF - BMJ Open
SN - 2044-6055
IS - 12
M1 - e076337
ER -
ID: 381555968