Experiences of family caregivers the first six months after patient diagnosis of necrotising soft tissue infection: A thematic analysis
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Experiences of family caregivers the first six months after patient diagnosis of necrotising soft tissue infection : A thematic analysis. / Knudsen, Vibeke E; Andersson, Annette E; Fagerdahl, Ann-Mari; Egerod, Ingrid.
I: Intensive and Critical Care Nursing, Bind 49, 2018, s. 28-36.Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › fagfællebedømt
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TY - JOUR
T1 - Experiences of family caregivers the first six months after patient diagnosis of necrotising soft tissue infection
T2 - A thematic analysis
AU - Knudsen, Vibeke E
AU - Andersson, Annette E
AU - Fagerdahl, Ann-Mari
AU - Egerod, Ingrid
N1 - Copyright © 2018 Elsevier Ltd. All rights reserved.
PY - 2018
Y1 - 2018
N2 - BACKGROUND: Necrotising soft tissue infection, or necrotising fasciitis, is a rapidly progressing disease requiring immediate diagnosis and treatment consisting of antimicrobial therapy, hyperbaric oxygen, debridement surgery and treatment in the intensive care unit. The harrowing illness trajectory affects the family caregivers potentially producing long-term psychological issues.OBJECTIVES: We aimed to explore the experiences and coping strategies of family caregivers during the first six months after patient diagnosis of necrotising soft tissue infection.METHODS: Our study had a prospective, explorative, qualitative design using semi-structured interviews and thematic analysis to understand necrotising soft tissue infection as an intrinsic and instrumental case. Family caregivers (n = 25) were recruited at three university hospitals in Denmark and Sweden.FINDINGS: We identified three chronological themes describing issues of importance to the family caregivers. In the intensive care unit: Coping with illness and intensive care; In the ward: Coping with injury and post-intensive care and At home: Coping with recovery and new home life.CONCLUSION: Challenges facing family caregivers of necrotising soft tissue infections survivors are still under-recognised. Healthcare professionals need to ensure that families and stakeholders throughout the patient trajectory have access to and co-create timely information and care plans to bridge the knowledge gap across care environments and to relieve family responsibility.
AB - BACKGROUND: Necrotising soft tissue infection, or necrotising fasciitis, is a rapidly progressing disease requiring immediate diagnosis and treatment consisting of antimicrobial therapy, hyperbaric oxygen, debridement surgery and treatment in the intensive care unit. The harrowing illness trajectory affects the family caregivers potentially producing long-term psychological issues.OBJECTIVES: We aimed to explore the experiences and coping strategies of family caregivers during the first six months after patient diagnosis of necrotising soft tissue infection.METHODS: Our study had a prospective, explorative, qualitative design using semi-structured interviews and thematic analysis to understand necrotising soft tissue infection as an intrinsic and instrumental case. Family caregivers (n = 25) were recruited at three university hospitals in Denmark and Sweden.FINDINGS: We identified three chronological themes describing issues of importance to the family caregivers. In the intensive care unit: Coping with illness and intensive care; In the ward: Coping with injury and post-intensive care and At home: Coping with recovery and new home life.CONCLUSION: Challenges facing family caregivers of necrotising soft tissue infections survivors are still under-recognised. Healthcare professionals need to ensure that families and stakeholders throughout the patient trajectory have access to and co-create timely information and care plans to bridge the knowledge gap across care environments and to relieve family responsibility.
KW - Adaptation, Psychological
KW - Adult
KW - Aged
KW - Aged, 80 and over
KW - Caregivers/psychology
KW - Critical Care Nursing
KW - Denmark
KW - Fasciitis, Necrotizing/nursing
KW - Female
KW - Humans
KW - Interviews as Topic
KW - Male
KW - Middle Aged
KW - Prospective Studies
KW - Psychometrics
KW - Surveys and Questionnaires
KW - Sweden
U2 - 10.1016/j.iccn.2018.05.005
DO - 10.1016/j.iccn.2018.05.005
M3 - Journal article
C2 - 29937074
VL - 49
SP - 28
EP - 36
JO - Intensive and Critical Care Nursing
JF - Intensive and Critical Care Nursing
SN - 0964-3397
ER -
ID: 218726416