Cluster headache – The worst possible pain on YouTube
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Cluster headache – The worst possible pain on YouTube. / Chaudhry, Basit Ali; Do, Thien Phu; Ashina, Håkan; Ashina, Messoud; Amin, Faisal Mohammad.
I: Headache, Bind 62, Nr. 9, 2022, s. 1222-1226.Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › fagfællebedømt
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TY - JOUR
T1 - Cluster headache – The worst possible pain on YouTube
AU - Chaudhry, Basit Ali
AU - Do, Thien Phu
AU - Ashina, Håkan
AU - Ashina, Messoud
AU - Amin, Faisal Mohammad
N1 - Publisher Copyright: © 2022 The Authors. Headache: The Journal of Head and Face Pain published by Wiley Periodicals LLC on behalf of American Headache Society.
PY - 2022
Y1 - 2022
N2 - In clinical practice, patients with cluster headache often ask questions or mention information that they have seen or heard on the Internet. Because YouTube (www.youtube.com) is the second most visited Web site worldwide and offers a plethora of video content, we found it timely to ascertain the quality of information on cluster headache that is freely available on YouTube. We conducted an inquiry on YouTube on January 24, 2022, with the search term “cluster headache.” Eligible YouTube videos included those with ≥10,000 views and content related to cluster headache. We assessed the quality and reliability of the videos with the Global Quality Scale and DISCERN, respectively. The search strategy identified 644 videos of which 134 were eligible for inclusion. The sources of the included videos were categorized as “healthcare professional/institution” (n = 45), “personal experience” (n = 52), and “other” (n = 37). According to the Global Quality Scale, 70 (52%) were low quality, 34 (25%) were of moderate quality, and 30 (22%) were of high quality. According to DISCERN, 104 (78%) were of low reliability, 28 (21%) were of moderate reliability, and 2 (1%) were of high reliability. The quality and reliability of cluster headache-related information on YouTube has room for improvement, even the content provided by healthcare providers. These findings should incentivize stakeholders, for example, government services, professional societies, healthcare providers, to provide accessible and better information on cluster headache.
AB - In clinical practice, patients with cluster headache often ask questions or mention information that they have seen or heard on the Internet. Because YouTube (www.youtube.com) is the second most visited Web site worldwide and offers a plethora of video content, we found it timely to ascertain the quality of information on cluster headache that is freely available on YouTube. We conducted an inquiry on YouTube on January 24, 2022, with the search term “cluster headache.” Eligible YouTube videos included those with ≥10,000 views and content related to cluster headache. We assessed the quality and reliability of the videos with the Global Quality Scale and DISCERN, respectively. The search strategy identified 644 videos of which 134 were eligible for inclusion. The sources of the included videos were categorized as “healthcare professional/institution” (n = 45), “personal experience” (n = 52), and “other” (n = 37). According to the Global Quality Scale, 70 (52%) were low quality, 34 (25%) were of moderate quality, and 30 (22%) were of high quality. According to DISCERN, 104 (78%) were of low reliability, 28 (21%) were of moderate reliability, and 2 (1%) were of high reliability. The quality and reliability of cluster headache-related information on YouTube has room for improvement, even the content provided by healthcare providers. These findings should incentivize stakeholders, for example, government services, professional societies, healthcare providers, to provide accessible and better information on cluster headache.
KW - consumer health information
KW - digital
KW - education
KW - online
KW - patient perspective
KW - social media
U2 - 10.1111/head.14368
DO - 10.1111/head.14368
M3 - Journal article
C2 - 36056715
AN - SCOPUS:85137327583
VL - 62
SP - 1222
EP - 1226
JO - Headache
JF - Headache
SN - 0017-8748
IS - 9
ER -
ID: 321555329