A qualitative study of young childhood cancer survivors and their parents’ experiences with treatment-related late effects in everyday life post-treatment
Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › fagfællebedømt
Standard
A qualitative study of young childhood cancer survivors and their parents’ experiences with treatment-related late effects in everyday life post-treatment. / Petersen, Natasha Nybro; Hansson, Helena; Lie, Hanne C.; Brinkkjær, Maria; Graungaard, Benjamin; Hamilton Larsen, Marie; Hamilton Larsen, Elna; Schmiegelow, Kjeld; Fridh, Martin Kaj; Bækgaard Larsen, Hanne.
I: Journal of Advanced Nursing, Bind 78, Nr. 3, 2022, s. 858-868.Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › fagfællebedømt
Harvard
APA
Vancouver
Author
Bibtex
}
RIS
TY - JOUR
T1 - A qualitative study of young childhood cancer survivors and their parents’ experiences with treatment-related late effects in everyday life post-treatment
AU - Petersen, Natasha Nybro
AU - Hansson, Helena
AU - Lie, Hanne C.
AU - Brinkkjær, Maria
AU - Graungaard, Benjamin
AU - Hamilton Larsen, Marie
AU - Hamilton Larsen, Elna
AU - Schmiegelow, Kjeld
AU - Fridh, Martin Kaj
AU - Bækgaard Larsen, Hanne
N1 - Publisher Copyright: © 2021 John Wiley & Sons Ltd
PY - 2022
Y1 - 2022
N2 - Aims: The purpose of this secondary analysis was to explore how young cancer survivors and their parents experience and manage treatment-related late effects in daily life post-treatment. Design: A phenomenological-hermeneutic explorative study. Methods: Using purposive sampling, we included 15 childhood cancer survivors (aged 11–18 years) and their parents who participated in semi-structured interviews from September 2019 through May 2020. We analysed the interviews paired using a thematic approach focused on meaning. Results: The central theme, ‘Negotiation daily life’, emerged as well as three interrelated sub-themes, that is ‘A changed everyday life’, ‘Physical activity as a tool’ and ‘Friends as a tool’. The childhood cancer survivors and their parents experienced, understood and interpreted the late effects differently. The difference between the survivors’ perceptions and those of their parents in managing treatment-related late effects in everyday life resulted in a continuous negotiation process between the parties. Parents highlighted the negative impact of late effects on their child's daily life in relation to physical activity, school and socialization while the survivors wished to leave the cancer experience behind and ‘move on’ with their friends. As a result, most of the survivors developed strategies to manage their social activities while their parents felt that the survivors neglected the late effects. Conclusion: The ongoing negotiation process between the childhood cancer survivors and their parents show the complexity of the new family dynamics on returning to everyday life post-treatment. For clinical nurses, that means that there should be focus on family dynamics and how the childhood cancer survivors and parents, respectively, manage the childhood cancer survivors’ late effects. Impact: Healthcare providers should distinguish between the needs of the survivors and those of their parents as they transition from treatment to everyday life, and especially in the management of late effects caused by the treatment.
AB - Aims: The purpose of this secondary analysis was to explore how young cancer survivors and their parents experience and manage treatment-related late effects in daily life post-treatment. Design: A phenomenological-hermeneutic explorative study. Methods: Using purposive sampling, we included 15 childhood cancer survivors (aged 11–18 years) and their parents who participated in semi-structured interviews from September 2019 through May 2020. We analysed the interviews paired using a thematic approach focused on meaning. Results: The central theme, ‘Negotiation daily life’, emerged as well as three interrelated sub-themes, that is ‘A changed everyday life’, ‘Physical activity as a tool’ and ‘Friends as a tool’. The childhood cancer survivors and their parents experienced, understood and interpreted the late effects differently. The difference between the survivors’ perceptions and those of their parents in managing treatment-related late effects in everyday life resulted in a continuous negotiation process between the parties. Parents highlighted the negative impact of late effects on their child's daily life in relation to physical activity, school and socialization while the survivors wished to leave the cancer experience behind and ‘move on’ with their friends. As a result, most of the survivors developed strategies to manage their social activities while their parents felt that the survivors neglected the late effects. Conclusion: The ongoing negotiation process between the childhood cancer survivors and their parents show the complexity of the new family dynamics on returning to everyday life post-treatment. For clinical nurses, that means that there should be focus on family dynamics and how the childhood cancer survivors and parents, respectively, manage the childhood cancer survivors’ late effects. Impact: Healthcare providers should distinguish between the needs of the survivors and those of their parents as they transition from treatment to everyday life, and especially in the management of late effects caused by the treatment.
KW - childhood cancer survivors
KW - everyday life
KW - late effects
KW - nurse
KW - nursing
KW - parents
KW - post-treatment
KW - psychosocial
KW - qualitative interviews
U2 - 10.1111/jan.15073
DO - 10.1111/jan.15073
M3 - Journal article
C2 - 34636441
AN - SCOPUS:85117116115
VL - 78
SP - 858
EP - 868
JO - Journal of Advanced Nursing
JF - Journal of Advanced Nursing
SN - 0309-2402
IS - 3
ER -
ID: 284406775