Emilia Niemiec

Emilia Niemiec

Postdoc


  1. 2023
  2. A cautionary tale about the adoption of medical AI in Sweden

    Niemiec, Emilia, Jan 2023, In: Nature Machine Intelligence. 5, 1, p. 5-7 3 p.

    Research output: Contribution to journalComment/debateResearchpeer-review

  3. 2022
  4. Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries

    Milne, R., Morley, K. I., Almarri, M. A., Atutornu, J., Baranova, E. E., Bevan, P., Cerezo, M., Cong, Y., Costa, A., Feijao, C., de Freitas, C., Fernow, J., Goodhand, P., Hasan, Q., Hibino, A., Houeland, G., Howard, H. C., Hussain Sheikh, Z., Malmgren, C. I., Izhevskaya, V. L. & 27 others, Jędrzejak, A., Jinhong, C., Kimura, M., Kleiderman, E., Liu, K., Mascalzoni, D., Mendes, Á., Minari, J., Nicol, D., Niemiec, Emilia, Patch, C., Prainsack, B., Rivière, M., Robarts, L., Roberts, J., Romano, V., Sheerah, H. A., Smith, J., Soulier, A., Steed, C., Stefànsdóttir, V., Tandre, C., Thorogood, A., Voigt, T. H., Wang, N., Yoshizawa, G. & Middleton, A., May 2022, In: Genetics in Medicine. 24, 5, p. 1120-1129 10 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  5. Will the EU Medical Device Regulation help to improve the safety and performance of medical AI devices?

    Niemiec, Emilia, 2022, In: Digital Health. 8, p. 1-8 8 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  6. 2021
  7. Published

    Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries

    Milne, R., Morley, K. I., Almarri, M. A., Anwer, S., Atutornu, J., Baranova, E. E., Bevan, P., Cerezo, M., Cong, Y., Costa, A., Critchley, C., Fernow, J., Goodhand, P., Hasan, Q., Hibino, A., Houeland, G., Howard, H. C., Hussain, S. Z., Malmgren, C. I., Izhevskaya, V. L. & 30 others, Jędrzejak, A., Jinhong, C., Kimura, M., Kleiderman, E., Leach, B., Liu, K., Mascalzoni, D., Mendes, Á., Minari, J., Nicol, D., Niemiec, Emilia, Patch, C., Pollard, J., Prainsack, B., Rivière, M., Robarts, L., Roberts, J., Romano, V., Sheerah, H. A., Smith, J., Soulier, A., Steed, C., Stefànsdóttir, V., Tandre, C., Thorogood, A., Voigt, T. H., Wang, N., West, A. V., Yoshizawa, G. & Middleton, A., Dec 2021, In: Genome Medicine. 13, 1, 92.

    Research output: Contribution to journalJournal articleResearchpeer-review

  8. Published

    Reply to Bronstein and Vinogradov

    Niemiec, Emilia, 3 Mar 2021, In: EMBO Reports. 22, 3, e52500.

    Research output: Contribution to journalLetterResearchpeer-review

  9. 2020
  10. Published

    COVID-19 and misinformation: Is censorship of social media a remedy to the spread of medical misinformation?

    Niemiec, Emilia, 5 Nov 2020, In: EMBO Reports. 21, 11, e51420.

    Research output: Contribution to journalComment/debateResearchpeer-review

  11. Published

    Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?

    Middleton, A., Milne, R., Almarri, M. A., Anwer, S., Atutornu, J., Baranova, E. E., Bevan, P., Cerezo, M., Cong, Y., Critchley, C., Fernow, J., Goodhand, P., Hasan, Q., Hibino, A., Houeland, G., Howard, H. C., Hussain, S. Z., Malmgren, C. I., Izhevskaya, V. L., Jędrzejak, A. & 29 others, Jinhong, C., Kimura, M., Kleiderman, E., Leach, B., Liu, K., Mascalzoni, D., Mendes, Á., Minari, J., Wang, N., Nicol, D., Niemiec, Emilia, Patch, C., Pollard, J., Prainsack, B., Rivière, M., Robarts, L., Roberts, J., Romano, V., Sheerah, H. A., Smith, J., Soulier, A., Steed, C., Stefànsdóttir, V., Tandre, C., Thorogood, A., Voigt, T. H., West, A. V., Yoshizawa, G. & Morley, K. I., 1 Oct 2020, In: American Journal of Human Genetics. 107, 4, p. 743-752 10 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  12. Published

    Communicating genetic information to family members: analysis of consent forms for diagnostic genomic sequencing

    Phillips, A., Niemiec, Emilia, Howard, H. C., Kagkelari, K., Borry, P. & Vears, D. F., 1 Sep 2020, In: European Journal of Human Genetics. 28, 9, p. 1160-1167 8 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  13. Published

    Willingness to donate genomic and other medical data: results from Germany

    Voigt, T. H., Holtz, V., Niemiec, Emilia, Howard, H. C., Middleton, A. & Prainsack, B., 1 Aug 2020, In: European Journal of Human Genetics. 28, 8, p. 1000-1009 10 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  14. Published

    Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data

    on behalf of the Participant Values Work Stream of the Global Alliance for Genomics and Health, O. B. O. T. P. V. W. S. O. T. G. A. F. G. A. H., 1 Apr 2020, In: European Journal of Human Genetics. 28, 4, p. 424-434 11 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  15. Published

    Germline Genome Editing Research: What Are Gamete Donors (Not) Informed about in Consent Forms?

    Niemiec, Emilia & Howard, H. C., Feb 2020, In: CRISPR Journal. 3, 1, p. 52-63 12 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  16. Published

    Ethical issues related to research on genome editing in human embryos

    Niemiec, Emilia & Howard, H. C., 2020, In: Computational and Structural Biotechnology Journal. 18, p. 887-896 10 p.

    Research output: Contribution to journalReviewResearchpeer-review

  17. Published

    Transparency, consent and trust in the use of customers' data by an online genetic testing company: an Exploratory survey among 23andMe users

    Raz, A. E., Niemiec, Emilia, Howard, H. C., Sterckx, S., Cockbain, J. & Prainsack, B., 2020, In: New Genetics and Society. 39, 4, p. 459-482 24 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  18. 2019
  19. Published

    Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia

    on behalf of the Participant Values Work Stream of the Global Alliance for Genomics and Health, O. B. O. T. P. V. W. S. O. T. G. A. F. G. A. H., 1 Dec 2019, In: Human Genetics. 138, 11-12, p. 1237-1246 10 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  20. Published

    Include egg donors in CRISPR gene-editing debate

    Niemiec, Emilia & Howard, H. C., 1 Nov 2019, In: Nature. 575, 7781, p. 51 1 p.

    Research output: Contribution to journalLetterResearchpeer-review

  21. Published

    Proteomic and transcriptomic experiments reveal an essential role of RNA degradosome complexes in shaping the transcriptome of Mycobacterium tuberculosis

    Płociński, P., MacIos, M., Houghton, J., Niemiec, Emilia, Płocińska, R., Brzostek, A., Słomka, M., Dziadek, J., Young, D. & Dziembowski, A., 20 Jun 2019, In: Nucleic Acids Research. 47, 11, p. 5892-5905 14 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  22. Published

    Attitudes of publics who are unwilling to donate DNA data for research

    Middleton, A., Milne, R., Thorogood, A., Kleiderman, E., Niemiec, Emilia, Prainsack, B., Farley, L., Bevan, P., Steed, C., Smith, J., Vears, D., Atutornu, J., Howard, H. C. & Morley, K. I., May 2019, In: European Journal of Medical Genetics. 62, 5, p. 316-323 8 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  23. Published

    Consenting patients to genome sequencing

    Niemiec, Emilia & Howard, H. C., 1 Jan 2019, Clinical Genome Sequencing: Psychological Considerations. Elsevier, p. 31-55 25 p.

    Research output: Chapter in Book/Report/Conference proceedingBook chapterResearchpeer-review

  24. Published

    «Genethics» and public health genomics

    Niemiec, Emilia & Howard, H. C., 1 Jan 2019, Applied Genomics and Public Health. Elsevier, p. 243-257 15 p.

    Research output: Chapter in Book/Report/Conference proceedingBook chapterResearchpeer-review

  25. 2018
  26. Published

    Analysis of VUS reporting, variant reinterpretation and recontact policies in clinical genomic sequencing consent forms

    Vears, D. F., Niemiec, Emilia, Howard, H. C. & Borry, P., 1 Dec 2018, In: European Journal of Human Genetics. 26, 12, p. 1743-1751 9 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  27. Published

    How do consent forms for diagnostic high-throughput sequencing address unsolicited and secondary findings? A content analysis

    Vears, D. F., Niemiec, Emilia, Howard, H. C. & Borry, P., Oct 2018, In: Clinical Genetics. 94, 3-4, p. 321-329 9 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  28. Published

    Readability of informed consent forms for whole-exome and whole-genome sequencing

    Niemiec, Emilia, Vears, D. F., Borry, P. & Howard, H. C., 1 Apr 2018, In: Journal of Community Genetics. 9, 2, p. 143-151 9 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  29. Published

    'Your DNA, Your Say': Global survey gathering attitudes toward genomics: Design, delivery and methods

    Middleton, A., Niemiec, E., Prainsack, B., Bobe, J., Farley, L., Steed, C., Smith, J., Bevan, P., Bonhomme, N., Kleiderman, E., Thorogood, A., Schickhardt, C., Garattini, C., Vears, D., Littler, K., Banner, N., Scott, E., Kovalevskaya, N. V., Levin, E., Morley, K. I. & 1 others, Howard, H. C., 2018, In: Personalized Medicine. 15, 4, p. 311-318 8 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  30. 2017
  31. Published

    Current ethical and legal issues in health-related direct-to-consumer genetic testing

    Niemiec, Emilia, Kalokairinou, L. & Howard, H. C., Sep 2017, In: Personalized Medicine. 14, 5, p. 433-445 13 p.

    Research output: Contribution to journalReviewResearchpeer-review

  32. 2016
  33. Published

    Content Analysis of Informed Consent for Whole Genome Sequencing Offered by Direct-to-Consumer Genetic Testing Companies

    Niemiec, Emilia, Borry, P., Pinxten, W. & Howard, H. C., 1 Dec 2016, In: Human Mutation. 37, 12, p. 1248-1256 9 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  34. Published

    Ethical issues in consumer genome sequencing: Use of consumers' samples and data

    Niemiec, Emilia & Howard, H. C., 1 Mar 2016, In: Applied and Translational Genomics. 8, p. 23-30 8 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  35. 2015
  36. Current Ethical Issues Related to the Implementation of Whole-Exome and Whole-Genome Sequencing

    Borry, P., Chokoshvili, D., Niemiec, Emilia, Kalokairinou, L., Vears, D. F. & Howard, H. C., 2015, Movement Disorder Genetics.

    Research output: Chapter in Book/Report/Conference proceedingBook chapterResearch

  37. 2013
  38. Published

    Plant nonsense-mediated mRNA decay is controlled by different autoregulatory circuits and can be induced by an EJC-like complex

    Nyikó, T., Kerényi, F., Szabadkai, L., Benkovics, A. H., Major, P., Sonkoly, B., Mérai, Z., Barta, E., Niemiec, Emilia, Kufel, J. & Silhavy, D., Jul 2013, In: Nucleic Acids Research. 41, 13, p. 6715-6728 14 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

ID: 369363556