Emilia Niemiec
Postdoc
JUR Center for Advanced Studies in Bioscience Innovation Law
Karen Blixen Plads 16
2300 København S
- 2023
A cautionary tale about the adoption of medical AI in Sweden
Niemiec, Emilia, Jan 2023, In: Nature Machine Intelligence. 5, 1, p. 5-7 3 p.Research output: Contribution to journal › Comment/debate › Research › peer-review
- 2022
Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries
Milne, R., Morley, K. I., Almarri, M. A., Atutornu, J., Baranova, E. E., Bevan, P., Cerezo, M., Cong, Y., Costa, A., Feijao, C., de Freitas, C., Fernow, J., Goodhand, P., Hasan, Q., Hibino, A., Houeland, G., Howard, H. C., Hussain Sheikh, Z., Malmgren, C. I., Izhevskaya, V. L. & 27 others, , May 2022, In: Genetics in Medicine. 24, 5, p. 1120-1129 10 p.Research output: Contribution to journal › Journal article › Research › peer-review
Will the EU Medical Device Regulation help to improve the safety and performance of medical AI devices?
Niemiec, Emilia, 2022, In: Digital Health. 8, p. 1-8 8 p.Research output: Contribution to journal › Journal article › Research › peer-review
- 2021
- Published
Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries
Milne, R., Morley, K. I., Almarri, M. A., Anwer, S., Atutornu, J., Baranova, E. E., Bevan, P., Cerezo, M., Cong, Y., Costa, A., Critchley, C., Fernow, J., Goodhand, P., Hasan, Q., Hibino, A., Houeland, G., Howard, H. C., Hussain, S. Z., Malmgren, C. I., Izhevskaya, V. L. & 30 others, , Dec 2021, In: Genome Medicine. 13, 1, 92.Research output: Contribution to journal › Journal article › Research › peer-review
- Published
Reply to Bronstein and Vinogradov
Niemiec, Emilia, 3 Mar 2021, In: EMBO Reports. 22, 3, e52500.Research output: Contribution to journal › Letter › Research › peer-review
- 2020
- Published
COVID-19 and misinformation: Is censorship of social media a remedy to the spread of medical misinformation?
Niemiec, Emilia, 5 Nov 2020, In: EMBO Reports. 21, 11, e51420.Research output: Contribution to journal › Comment/debate › Research › peer-review
- Published
Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?
Middleton, A., Milne, R., Almarri, M. A., Anwer, S., Atutornu, J., Baranova, E. E., Bevan, P., Cerezo, M., Cong, Y., Critchley, C., Fernow, J., Goodhand, P., Hasan, Q., Hibino, A., Houeland, G., Howard, H. C., Hussain, S. Z., Malmgren, C. I., Izhevskaya, V. L., Jędrzejak, A. & 29 others, , 1 Oct 2020, In: American Journal of Human Genetics. 107, 4, p. 743-752 10 p.Research output: Contribution to journal › Journal article › Research › peer-review
- Published
Communicating genetic information to family members: analysis of consent forms for diagnostic genomic sequencing
Phillips, A., Niemiec, Emilia, Howard, H. C., Kagkelari, K., Borry, P. & Vears, D. F., 1 Sep 2020, In: European Journal of Human Genetics. 28, 9, p. 1160-1167 8 p.Research output: Contribution to journal › Journal article › Research › peer-review
- Published
Willingness to donate genomic and other medical data: results from Germany
Voigt, T. H., Holtz, V., Niemiec, Emilia, Howard, H. C., Middleton, A. & Prainsack, B., 1 Aug 2020, In: European Journal of Human Genetics. 28, 8, p. 1000-1009 10 p.Research output: Contribution to journal › Journal article › Research › peer-review
- Published
Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data
on behalf of the Participant Values Work Stream of the Global Alliance for Genomics and Health, O. B. O. T. P. V. W. S. O. T. G. A. F. G. A. H., 1 Apr 2020, In: European Journal of Human Genetics. 28, 4, p. 424-434 11 p.Research output: Contribution to journal › Journal article › Research › peer-review
- Published
Germline Genome Editing Research: What Are Gamete Donors (Not) Informed about in Consent Forms?
Niemiec, Emilia & Howard, H. C., Feb 2020, In: CRISPR Journal. 3, 1, p. 52-63 12 p.Research output: Contribution to journal › Journal article › Research › peer-review
- Published
Ethical issues related to research on genome editing in human embryos
Niemiec, Emilia & Howard, H. C., 2020, In: Computational and Structural Biotechnology Journal. 18, p. 887-896 10 p.Research output: Contribution to journal › Review › Research › peer-review
- Published
Transparency, consent and trust in the use of customers' data by an online genetic testing company: an Exploratory survey among 23andMe users
Raz, A. E., Niemiec, Emilia, Howard, H. C., Sterckx, S., Cockbain, J. & Prainsack, B., 2020, In: New Genetics and Society. 39, 4, p. 459-482 24 p.Research output: Contribution to journal › Journal article › Research › peer-review
- 2019
- Published
Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia
on behalf of the Participant Values Work Stream of the Global Alliance for Genomics and Health, O. B. O. T. P. V. W. S. O. T. G. A. F. G. A. H., 1 Dec 2019, In: Human Genetics. 138, 11-12, p. 1237-1246 10 p.Research output: Contribution to journal › Journal article › Research › peer-review
- Published
Include egg donors in CRISPR gene-editing debate
Niemiec, Emilia & Howard, H. C., 1 Nov 2019, In: Nature. 575, 7781, p. 51 1 p.Research output: Contribution to journal › Letter › Research › peer-review
- Published
Proteomic and transcriptomic experiments reveal an essential role of RNA degradosome complexes in shaping the transcriptome of Mycobacterium tuberculosis
Płociński, P., MacIos, M., Houghton, J., Niemiec, Emilia, Płocińska, R., Brzostek, A., Słomka, M., Dziadek, J., Young, D. & Dziembowski, A., 20 Jun 2019, In: Nucleic Acids Research. 47, 11, p. 5892-5905 14 p.Research output: Contribution to journal › Journal article › Research › peer-review
- Published
Attitudes of publics who are unwilling to donate DNA data for research
Middleton, A., Milne, R., Thorogood, A., Kleiderman, E., Niemiec, Emilia, Prainsack, B., Farley, L., Bevan, P., Steed, C., Smith, J., Vears, D., Atutornu, J., Howard, H. C. & Morley, K. I., May 2019, In: European Journal of Medical Genetics. 62, 5, p. 316-323 8 p.Research output: Contribution to journal › Journal article › Research › peer-review
- Published
Consenting patients to genome sequencing
Niemiec, Emilia & Howard, H. C., 1 Jan 2019, Clinical Genome Sequencing: Psychological Considerations. Elsevier, p. 31-55 25 p.Research output: Chapter in Book/Report/Conference proceeding › Book chapter › Research › peer-review
- Published
«Genethics» and public health genomics
Niemiec, Emilia & Howard, H. C., 1 Jan 2019, Applied Genomics and Public Health. Elsevier, p. 243-257 15 p.Research output: Chapter in Book/Report/Conference proceeding › Book chapter › Research › peer-review
- 2018
- Published
Analysis of VUS reporting, variant reinterpretation and recontact policies in clinical genomic sequencing consent forms
Vears, D. F., Niemiec, Emilia, Howard, H. C. & Borry, P., 1 Dec 2018, In: European Journal of Human Genetics. 26, 12, p. 1743-1751 9 p.Research output: Contribution to journal › Journal article › Research › peer-review
- Published
How do consent forms for diagnostic high-throughput sequencing address unsolicited and secondary findings? A content analysis
Vears, D. F., Niemiec, Emilia, Howard, H. C. & Borry, P., Oct 2018, In: Clinical Genetics. 94, 3-4, p. 321-329 9 p.Research output: Contribution to journal › Journal article › Research › peer-review
- Published
Readability of informed consent forms for whole-exome and whole-genome sequencing
Niemiec, Emilia, Vears, D. F., Borry, P. & Howard, H. C., 1 Apr 2018, In: Journal of Community Genetics. 9, 2, p. 143-151 9 p.Research output: Contribution to journal › Journal article › Research › peer-review
- Published
'Your DNA, Your Say': Global survey gathering attitudes toward genomics: Design, delivery and methods
Middleton, A., Niemiec, E., Prainsack, B., Bobe, J., Farley, L., Steed, C., Smith, J., Bevan, P., Bonhomme, N., Kleiderman, E., Thorogood, A., Schickhardt, C., Garattini, C., Vears, D., Littler, K., Banner, N., Scott, E., Kovalevskaya, N. V., Levin, E., Morley, K. I. & 1 others, , 2018, In: Personalized Medicine. 15, 4, p. 311-318 8 p.Research output: Contribution to journal › Journal article › Research › peer-review
- 2017
- Published
Current ethical and legal issues in health-related direct-to-consumer genetic testing
Niemiec, Emilia, Kalokairinou, L. & Howard, H. C., Sep 2017, In: Personalized Medicine. 14, 5, p. 433-445 13 p.Research output: Contribution to journal › Review › Research › peer-review
- 2016
- Published
Content Analysis of Informed Consent for Whole Genome Sequencing Offered by Direct-to-Consumer Genetic Testing Companies
Niemiec, Emilia, Borry, P., Pinxten, W. & Howard, H. C., 1 Dec 2016, In: Human Mutation. 37, 12, p. 1248-1256 9 p.Research output: Contribution to journal › Journal article › Research › peer-review
- Published
Ethical issues in consumer genome sequencing: Use of consumers' samples and data
Niemiec, Emilia & Howard, H. C., 1 Mar 2016, In: Applied and Translational Genomics. 8, p. 23-30 8 p.Research output: Contribution to journal › Journal article › Research › peer-review
- 2015
Current Ethical Issues Related to the Implementation of Whole-Exome and Whole-Genome Sequencing
Borry, P., Chokoshvili, D., Niemiec, Emilia, Kalokairinou, L., Vears, D. F. & Howard, H. C., 2015, Movement Disorder Genetics.Research output: Chapter in Book/Report/Conference proceeding › Book chapter › Research
- 2013
- Published
Plant nonsense-mediated mRNA decay is controlled by different autoregulatory circuits and can be induced by an EJC-like complex
Nyikó, T., Kerényi, F., Szabadkai, L., Benkovics, A. H., Major, P., Sonkoly, B., Mérai, Z., Barta, E., Niemiec, Emilia, Kufel, J. & Silhavy, D., Jul 2013, In: Nucleic Acids Research. 41, 13, p. 6715-6728 14 p.Research output: Contribution to journal › Journal article › Research › peer-review
ID: 369363556