Welfare consequences for people with epilepsy and their partners: A matched nationwide study in Denmark
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Welfare consequences for people with epilepsy and their partners : A matched nationwide study in Denmark. / Jennum, Poul; Sabers, Anne; Christensen, Jakob; Ibsen, Rikke; Kjellberg, Jakob.
In: Seizure, Vol. 49, 2017, p. 17-24.Research output: Contribution to journal › Journal article › Research › peer-review
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TY - JOUR
T1 - Welfare consequences for people with epilepsy and their partners
T2 - A matched nationwide study in Denmark
AU - Jennum, Poul
AU - Sabers, Anne
AU - Christensen, Jakob
AU - Ibsen, Rikke
AU - Kjellberg, Jakob
N1 - Copyright © 2017 British Epilepsy Association. Published by Elsevier Ltd. All rights reserved.
PY - 2017
Y1 - 2017
N2 - PURPOSE: We aimed to evaluate the excess direct and indirect costs associated with epilepsy.METHODS: From the Danish National Patient Registry (1998-2013), we identified people within all ages with an epilepsy diagnosis and matched them to control individuals. Additionally, partners of people with epilepsy were identified, who were compared with control partners. Direct costs included frequencies and costs of hospitalizations and weighted outpatient use according to diagnosis-related group, and specific outpatient costs based on data from the Danish Ministry of Health. The use and costs of drugs were based on data from the Danish Medicines Agency. The frequencies of visits and hospitalizations, and costs from general practice were derived from data from the National Health Security. Indirect costs included labor supply-based income data, and all social transfer payments obtained from Coherent Social Statistics.RESULTS: A greater percentage of people with epilepsy and their partners compared with respective control subjects received social services (sick pay or disability pension). Those with epilepsy had a lower employment rate than did controls for equivalent periods up to eight years before the diagnosis was made. Mortality was significantly higher in people with epilepsy than in control individuals (hazard ratio 2.38 (95% CI: 2.34, 2.41). The additional direct and indirect annual costs of epilepsy compared with controls were €11,223 for persons with epilepsy and €2,494 for their partners.CONCLUSION: Epilepsy has major socioeconomic consequences for individual patients, their partners and society.
AB - PURPOSE: We aimed to evaluate the excess direct and indirect costs associated with epilepsy.METHODS: From the Danish National Patient Registry (1998-2013), we identified people within all ages with an epilepsy diagnosis and matched them to control individuals. Additionally, partners of people with epilepsy were identified, who were compared with control partners. Direct costs included frequencies and costs of hospitalizations and weighted outpatient use according to diagnosis-related group, and specific outpatient costs based on data from the Danish Ministry of Health. The use and costs of drugs were based on data from the Danish Medicines Agency. The frequencies of visits and hospitalizations, and costs from general practice were derived from data from the National Health Security. Indirect costs included labor supply-based income data, and all social transfer payments obtained from Coherent Social Statistics.RESULTS: A greater percentage of people with epilepsy and their partners compared with respective control subjects received social services (sick pay or disability pension). Those with epilepsy had a lower employment rate than did controls for equivalent periods up to eight years before the diagnosis was made. Mortality was significantly higher in people with epilepsy than in control individuals (hazard ratio 2.38 (95% CI: 2.34, 2.41). The additional direct and indirect annual costs of epilepsy compared with controls were €11,223 for persons with epilepsy and €2,494 for their partners.CONCLUSION: Epilepsy has major socioeconomic consequences for individual patients, their partners and society.
KW - Adult
KW - Aged
KW - Aged, 80 and over
KW - Case-Control Studies
KW - Costs and Cost Analysis/statistics & numerical data
KW - Denmark/epidemiology
KW - Epilepsy/economics
KW - Female
KW - Health Care Costs/statistics & numerical data
KW - Humans
KW - Male
KW - Middle Aged
KW - Registries
KW - Social Welfare/economics
KW - Spouses/statistics & numerical data
KW - Young Adult
U2 - 10.1016/j.seizure.2017.05.007
DO - 10.1016/j.seizure.2017.05.007
M3 - Journal article
C2 - 28531819
VL - 49
SP - 17
EP - 24
JO - Seizure : the journal of the British Epilepsy Association
JF - Seizure : the journal of the British Epilepsy Association
SN - 1059-1311
ER -
ID: 195042863