Usage and impact of patient-reported outcomes in epilepsy
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Usage and impact of patient-reported outcomes in epilepsy. / Vonck, Kristl; Biraben, Arnaud; Bosak, Magdalena; Jennum, Poul Jørgen; Kimiskidis, Vasilios K.; Marusic, Petr; Mitchell, James W.; Ferreira, Lara N.; Ondrušová, Martina; Pana, Adrian; Persson, Ulf; von Oertzen, Tim J.; Lattanzi, Simona.
In: Brain and Behavior, Vol. 13, No. 12, e3342, 2023.Research output: Contribution to journal › Journal article › Research › peer-review
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TY - JOUR
T1 - Usage and impact of patient-reported outcomes in epilepsy
AU - Vonck, Kristl
AU - Biraben, Arnaud
AU - Bosak, Magdalena
AU - Jennum, Poul Jørgen
AU - Kimiskidis, Vasilios K.
AU - Marusic, Petr
AU - Mitchell, James W.
AU - Ferreira, Lara N.
AU - Ondrušová, Martina
AU - Pana, Adrian
AU - Persson, Ulf
AU - von Oertzen, Tim J.
AU - Lattanzi, Simona
N1 - Publisher Copyright: © 2023 The Authors. Brain and Behavior published by Wiley Periodicals LLC.
PY - 2023
Y1 - 2023
N2 - Background: The use of patient-reported outcomes (PRO) in clinical practice is gaining increasing attention. This study aimed to provide a critical assessment of the current state-of-the-art and beliefs about the use of PRO in the management of people with epilepsy across some European countries. Methods: Structured interviews were conducted with European experts to collect insights about (I) the personal experience with PRO; (II) the value and impact of PRO in the decision-making process at the national level; and (III) the interest for and use of PRO by national health authorities. Results: Nine neurologists (Austria, Belgium, Czechia, Denmark, France, Greece, Italy, Poland, and United Kingdom), three health economists (Portugal, Romania, and Sweden), and one epidemiologist (Slovakia) participated. They all stated that PRO are collected at their own countries in the context of clinical trials and/or specific projects. During everyday clinical practice, PRO are collected routinely/almost routinely in Austria and Sweden and only at the discretion of the treating physicians in Czechia, Denmark, France, Greece, and Portugal. There was complete consensus about the favorable impact that the PRO can have in terms of clinical outcomes, healthcare resources utilization, and general patient satisfaction. Only participants from Portugal and Sweden answered that the PRO are perceived as very important by the National Health Authorities of their respective countries. Conclusions: Differences exist in attitudes and perspectives about PRO in epilepsy across Europe. An active plan is warranted to harmonize the measurement of PRO and ensure they can be relevant to people with epilepsy and health services.
AB - Background: The use of patient-reported outcomes (PRO) in clinical practice is gaining increasing attention. This study aimed to provide a critical assessment of the current state-of-the-art and beliefs about the use of PRO in the management of people with epilepsy across some European countries. Methods: Structured interviews were conducted with European experts to collect insights about (I) the personal experience with PRO; (II) the value and impact of PRO in the decision-making process at the national level; and (III) the interest for and use of PRO by national health authorities. Results: Nine neurologists (Austria, Belgium, Czechia, Denmark, France, Greece, Italy, Poland, and United Kingdom), three health economists (Portugal, Romania, and Sweden), and one epidemiologist (Slovakia) participated. They all stated that PRO are collected at their own countries in the context of clinical trials and/or specific projects. During everyday clinical practice, PRO are collected routinely/almost routinely in Austria and Sweden and only at the discretion of the treating physicians in Czechia, Denmark, France, Greece, and Portugal. There was complete consensus about the favorable impact that the PRO can have in terms of clinical outcomes, healthcare resources utilization, and general patient satisfaction. Only participants from Portugal and Sweden answered that the PRO are perceived as very important by the National Health Authorities of their respective countries. Conclusions: Differences exist in attitudes and perspectives about PRO in epilepsy across Europe. An active plan is warranted to harmonize the measurement of PRO and ensure they can be relevant to people with epilepsy and health services.
KW - economics
KW - epilepsy
KW - patient-reported outcomes
KW - seizure
U2 - 10.1002/brb3.3342
DO - 10.1002/brb3.3342
M3 - Journal article
C2 - 37997564
AN - SCOPUS:85177578105
VL - 13
JO - Brain and Behavior
JF - Brain and Behavior
SN - 2157-9032
IS - 12
M1 - e3342
ER -
ID: 396015345