Children and young people with perinatal HIV in Europe: epidemiological situation in 2014 and implications for the future
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Children and young people with perinatal HIV in Europe : epidemiological situation in 2014 and implications for the future. / Grarup, Jesper; Kirk, Ole; Lundgren, Jens; Raben, Dorthe; Writing group for the Kids to Adults Working Group and Data Management and Harmonisation Group in EuroCoord.
In: Eurosurveillance (Print), Vol. 21, No. 10, 30162, 2016.Research output: Contribution to journal › Journal article › Research › peer-review
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TY - JOUR
T1 - Children and young people with perinatal HIV in Europe
T2 - epidemiological situation in 2014 and implications for the future
AU - Grarup, Jesper
AU - Kirk, Ole
AU - Lundgren, Jens
AU - Raben, Dorthe
AU - Writing group for the Kids to Adults Working Group and Data Management and Harmonisation Group in EuroCoord
PY - 2016
Y1 - 2016
N2 - Accurate ascertainment of the number of children living with human immunodeficiency virus (HIV) is important to plan paediatric and adolescent health services. In Europe, the first generation of perinatally HIV-infected survivors are transferring to adult care and their health needs are unknown. We undertook an online survey of HIV cohort studies participating in the EuroCoord Network of Excellence to ascertain the number of perinatally HIV-infected (pHIV) patients included, to compare it with those published by the European Centre for Disease Prevention and Control (ECDC) and the World Health Organization (WHO) and to assess the ability of countries to follow up pHIV patients after transfer to adult care. At the end of 2013, 16 countries in EuroCoord reported 8,229 pHIV patients in follow-up in cohorts, compared with 5,160 cumulative diagnoses reported by the ECDC in the same area. Follow-up of pHIV patients after transfer to adult care varied. It is likely that the number of diagnoses of perinatal HIV reported to ECDC is an underestimate, although this varies by country. Further work is needed to refine estimates and encourage follow-up in adult HIV cohorts to investigate long-term outcomes and improve the care of the next generation of children with HIV.
AB - Accurate ascertainment of the number of children living with human immunodeficiency virus (HIV) is important to plan paediatric and adolescent health services. In Europe, the first generation of perinatally HIV-infected survivors are transferring to adult care and their health needs are unknown. We undertook an online survey of HIV cohort studies participating in the EuroCoord Network of Excellence to ascertain the number of perinatally HIV-infected (pHIV) patients included, to compare it with those published by the European Centre for Disease Prevention and Control (ECDC) and the World Health Organization (WHO) and to assess the ability of countries to follow up pHIV patients after transfer to adult care. At the end of 2013, 16 countries in EuroCoord reported 8,229 pHIV patients in follow-up in cohorts, compared with 5,160 cumulative diagnoses reported by the ECDC in the same area. Follow-up of pHIV patients after transfer to adult care varied. It is likely that the number of diagnoses of perinatal HIV reported to ECDC is an underestimate, although this varies by country. Further work is needed to refine estimates and encourage follow-up in adult HIV cohorts to investigate long-term outcomes and improve the care of the next generation of children with HIV.
KW - Adolescent
KW - Adult
KW - Cohort Studies
KW - Europe
KW - Female
KW - HIV Infections
KW - Humans
KW - Infant, Newborn
KW - Infectious Disease Transmission, Vertical
KW - Surveys and Questionnaires
KW - Young Adult
KW - Journal Article
KW - Research Support, Non-U.S. Gov't
U2 - 10.2807/1560-7917.ES.2016.21.10.30162
DO - 10.2807/1560-7917.ES.2016.21.10.30162
M3 - Journal article
C2 - 26988197
VL - 21
JO - Eurosurveillance
JF - Eurosurveillance
SN - 1025-496X
IS - 10
M1 - 30162
ER -
ID: 176668187