Participation in inpatient care from the perspective of family members of palliative care patients
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Participation in inpatient care from the perspective of family members of palliative care patients. / Saarinen, Johanna; Mishina, Kaisa; Soikkeli-Jalonen, Anu; Konradsen, Hanne; Haavisto, Elina.
I: International Journal of Palliative Nursing, Bind 29, Nr. 9, 2023, s. 446-454.Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › fagfællebedømt
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TY - JOUR
T1 - Participation in inpatient care from the perspective of family members of palliative care patients
AU - Saarinen, Johanna
AU - Mishina, Kaisa
AU - Soikkeli-Jalonen, Anu
AU - Konradsen, Hanne
AU - Haavisto, Elina
N1 - Publisher Copyright: © 2023 MA Healthcare Ltd. All rights reserved.
PY - 2023
Y1 - 2023
N2 - Background: The participation of family members in inpatient palliative care has been shown to be meaningful; it contributes to the wellbeing of the patient. Even so, little is known about the perspectives of family members regarding their participation in this type of care. Aim: The aim of this study was to describe participation in inpatient care from the perspective of family members of palliative care patients. Method: This study involved semi-structured individual interviews with family members (n=19) of patients receiving inpatient palliative care, as well as inductive thematic analysis. Findings: Four main themes describing the family members perspectives of their participation in inpatient palliative care were identified: family members attending to everyday activities, importance of participation to family members, family members providing emotional support to patients and the role of family members in discussions and decision-making processes concerning patient care. Conclusion: Family members participate in inpatient palliative care in different ways. Participation was experienced as important to patients and family members, and some family members felt that participation may have supported their coping process.
AB - Background: The participation of family members in inpatient palliative care has been shown to be meaningful; it contributes to the wellbeing of the patient. Even so, little is known about the perspectives of family members regarding their participation in this type of care. Aim: The aim of this study was to describe participation in inpatient care from the perspective of family members of palliative care patients. Method: This study involved semi-structured individual interviews with family members (n=19) of patients receiving inpatient palliative care, as well as inductive thematic analysis. Findings: Four main themes describing the family members perspectives of their participation in inpatient palliative care were identified: family members attending to everyday activities, importance of participation to family members, family members providing emotional support to patients and the role of family members in discussions and decision-making processes concerning patient care. Conclusion: Family members participate in inpatient palliative care in different ways. Participation was experienced as important to patients and family members, and some family members felt that participation may have supported their coping process.
KW - family member
KW - inpatient
KW - palliative care
KW - participation
KW - qualitative study
U2 - 10.12968/ijpn.2023.29.9.446
DO - 10.12968/ijpn.2023.29.9.446
M3 - Journal article
C2 - 37757806
AN - SCOPUS:85182911513
VL - 29
SP - 446
EP - 454
JO - International Journal of Palliative Nursing
JF - International Journal of Palliative Nursing
SN - 1357-6321
IS - 9
ER -
ID: 396399275