Images of suffering depicted in diaries of family caregivers in the acute stage of necrotising soft tissue infection: A content analysis
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Images of suffering depicted in diaries of family caregivers in the acute stage of necrotising soft tissue infection : A content analysis. / Egerod, Ingrid; Andersson, Annette E; Fagerdahl, Ann-Mari; Knudsen, Vibeke E.
I: Intensive and Critical Care Nursing, Bind 41, 2017, s. 57-62.Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › fagfællebedømt
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TY - JOUR
T1 - Images of suffering depicted in diaries of family caregivers in the acute stage of necrotising soft tissue infection
T2 - A content analysis
AU - Egerod, Ingrid
AU - Andersson, Annette E
AU - Fagerdahl, Ann-Mari
AU - Knudsen, Vibeke E
N1 - Copyright © 2017 Elsevier Ltd. All rights reserved.
PY - 2017
Y1 - 2017
N2 - OBJECTIVES: Severe necrotising soft tissue infections (NSTI) are rare life threatening rapidly progressing bacterial infections requiring immediate diagnosis and treatment. The aim of the study was to explore the experience of family caregivers of patients with necrotising soft tissue infection during the acute stage of disease.METHODS: Our study had a qualitative descriptive binational design using qualitative content analysis to explore diaries written by close family members (n=15). Participants were recruited from university hospitals in Denmark and Sweden.FINDINGS: Three main categories emerged: Trajectory, Treatment, and Patient & Family. The first helped us construct an overview of the NSTI trajectory showing issues of importance to patient and family caregivers. The following categories were analysed further to describe four themes central to the family caregiver experience: craving information, needing to be near, suffering separation and network taking over.CONCLUSIONS: Necrotising soft tissue infections are uncommon causing shock and concern. Centralised treatment might involve physical separation of patient and family during the acute stage of illness. Family accommodations near the patient and accessibility to adequate communication devices at the bedside are recommended. Health professionals need to keep in mind the importance of information and reassurance on the wellbeing of the family and ultimately of the patient.
AB - OBJECTIVES: Severe necrotising soft tissue infections (NSTI) are rare life threatening rapidly progressing bacterial infections requiring immediate diagnosis and treatment. The aim of the study was to explore the experience of family caregivers of patients with necrotising soft tissue infection during the acute stage of disease.METHODS: Our study had a qualitative descriptive binational design using qualitative content analysis to explore diaries written by close family members (n=15). Participants were recruited from university hospitals in Denmark and Sweden.FINDINGS: Three main categories emerged: Trajectory, Treatment, and Patient & Family. The first helped us construct an overview of the NSTI trajectory showing issues of importance to patient and family caregivers. The following categories were analysed further to describe four themes central to the family caregiver experience: craving information, needing to be near, suffering separation and network taking over.CONCLUSIONS: Necrotising soft tissue infections are uncommon causing shock and concern. Centralised treatment might involve physical separation of patient and family during the acute stage of illness. Family accommodations near the patient and accessibility to adequate communication devices at the bedside are recommended. Health professionals need to keep in mind the importance of information and reassurance on the wellbeing of the family and ultimately of the patient.
KW - Acute Disease/psychology
KW - Adult
KW - Aged
KW - Aged, 80 and over
KW - Caregivers/psychology
KW - Denmark
KW - Female
KW - Hospitals, University/organization & administration
KW - Humans
KW - Intensive Care Units/organization & administration
KW - Life Change Events
KW - Male
KW - Medical Records
KW - Middle Aged
KW - Necrosis/complications
KW - Qualitative Research
KW - Soft Tissue Infections/complications
KW - Sweden
U2 - 10.1016/j.iccn.2017.02.004
DO - 10.1016/j.iccn.2017.02.004
M3 - Journal article
C2 - 28292567
VL - 41
SP - 57
EP - 62
JO - Intensive and Critical Care Nursing
JF - Intensive and Critical Care Nursing
SN - 0964-3397
ER -
ID: 194976037