Establishing the First International Genetic Discrimination Observatory
Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › fagfællebedømt
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Establishing the First International Genetic Discrimination Observatory. / Joly, Yann; Dalpe, Gratien ; Minssen, Timo; Ó Cathaoir, Katharina; De Paor, Aisling ; Granados Moreno, Palmira; Dove, Edward ; Van Hoyweghen, Ine ; Ho, Chih-hsing; Ho, Calvin WL; Kim, Hannah; Song, Lingqiao; Otlowski, Margaret; Prince, Anya; van Hoyweghen, Ine; Voigt, TH; Thiraps, A; Pilar, Maria; BEVIERE BOYER, Bénédicte ; ?, Kato; Yamasaki, Chisato ; Bombard, Yvonne ; Dupras, Charles .
I: Nature Genetics, Bind 52, 23.03.2020, s. 466-468.Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › fagfællebedømt
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TY - JOUR
T1 - Establishing the First International Genetic Discrimination Observatory
AU - Joly, Yann
AU - Dalpe, Gratien
AU - Minssen, Timo
AU - Ó Cathaoir, Katharina
AU - De Paor, Aisling
AU - Granados Moreno, Palmira
AU - Dove, Edward
AU - Van Hoyweghen, Ine
AU - Ho, Chih-hsing
AU - Ho, Calvin WL
AU - Kim, Hannah
AU - Song, Lingqiao
AU - Otlowski, Margaret
AU - Prince, Anya
AU - van Hoyweghen, Ine
AU - Voigt, TH
AU - Thiraps, A
AU - Pilar, Maria
AU - BEVIERE BOYER, Bénédicte
AU - ?, Kato
AU - Yamasaki, Chisato
AU - Bombard, Yvonne
AU - Dupras, Charles
PY - 2020/3/23
Y1 - 2020/3/23
N2 - Over twenty years after the Universal Declaration on the Human Genome and Human Rights alerted the international community of the need to prevent discriminatory use of genetic information, it still remains a pervasive issue. Legal efforts to address genetic discrimination (GD) solely at the national level are unlikely to resolve a problem that now transcends national frontiers. People should have the opportunity to avail themselves from novel genetic and computational biology technologies without fear of GD. To address the situation, we propose and initiate an international Genetic Discrimination Observatory (GDO) that involves a dynamic virtual network of researchers and stakeholders from over 19 jurisdictions. The GDO will produce information, tools and policy models to help assess and prevent GD. Some of these outputs are already available on the GDO website (https://gdo.global/en/gdo-description). In this paper we outline the reason and describe the basic features of this timely initiative.
AB - Over twenty years after the Universal Declaration on the Human Genome and Human Rights alerted the international community of the need to prevent discriminatory use of genetic information, it still remains a pervasive issue. Legal efforts to address genetic discrimination (GD) solely at the national level are unlikely to resolve a problem that now transcends national frontiers. People should have the opportunity to avail themselves from novel genetic and computational biology technologies without fear of GD. To address the situation, we propose and initiate an international Genetic Discrimination Observatory (GDO) that involves a dynamic virtual network of researchers and stakeholders from over 19 jurisdictions. The GDO will produce information, tools and policy models to help assess and prevent GD. Some of these outputs are already available on the GDO website (https://gdo.global/en/gdo-description). In this paper we outline the reason and describe the basic features of this timely initiative.
U2 - 10.1038/s41588-020-0606-5
DO - 10.1038/s41588-020-0606-5
M3 - Journal article
C2 - 32203466
VL - 52
SP - 466
EP - 468
JO - Nature Genetics
JF - Nature Genetics
SN - 1061-4036
ER -
ID: 230563266