Spina bifida and sexuality
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Spina bifida and sexuality. / von Linstow, Michael Ernst; Biering-Sørensen, Ida; Liebach, Annette; Lind, Marianne; Seitzberg, Aase; Hansen, Rikke Bølling; Biering-Sørensen, Fin.
In: Journal of Rehabilitation Medicine, Vol. 46, No. 9, 2014, p. 891-897.Research output: Contribution to journal › Journal article › Research › peer-review
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TY - JOUR
T1 - Spina bifida and sexuality
AU - von Linstow, Michael Ernst
AU - Biering-Sørensen, Ida
AU - Liebach, Annette
AU - Lind, Marianne
AU - Seitzberg, Aase
AU - Hansen, Rikke Bølling
AU - Biering-Sørensen, Fin
PY - 2014
Y1 - 2014
N2 - OBJECTIVE: To evaluate sexual function amongst adult individuals with spina bifida and to register their subjective satisfaction with their sexual life and relationships.SETTING: Department for Spinal Cord Injuries, East Denmark.STUDY DESIGN AND METHODS: Cohort study. Medical record information, neurological examination, personal interview, Functional Independence Measure (FIMTM), Medical Outcome Study Short Form 36 (SF-36) on quality of life, and questions on sexual function and related topics. Study cohort: Fifty-three participants (27 women, 26 men) with spina bifida (mean age 27.1, range 18-35) years. Response rate 74%.RESULTS: Fifty-one percent of subjects regarded their sexual life as a failure or dysfunctional. However, 45% reported being satisfied with their sexual life. Participants with partners were more satisfied with their sexual life than those without partners. Faecal, but not urinary, incontinence was associated with poorer sexual function and less satisfaction. Forty-nine percent of subjects indicated that the sexual education they received at puberty was useful; however, 32% lacked knowledge about their sexual functioning with regard to their disability.CONCLUSION: There is a need for further sexual education and counselling for adults with spina bifida in order to improve their sexuality and quality of life.
AB - OBJECTIVE: To evaluate sexual function amongst adult individuals with spina bifida and to register their subjective satisfaction with their sexual life and relationships.SETTING: Department for Spinal Cord Injuries, East Denmark.STUDY DESIGN AND METHODS: Cohort study. Medical record information, neurological examination, personal interview, Functional Independence Measure (FIMTM), Medical Outcome Study Short Form 36 (SF-36) on quality of life, and questions on sexual function and related topics. Study cohort: Fifty-three participants (27 women, 26 men) with spina bifida (mean age 27.1, range 18-35) years. Response rate 74%.RESULTS: Fifty-one percent of subjects regarded their sexual life as a failure or dysfunctional. However, 45% reported being satisfied with their sexual life. Participants with partners were more satisfied with their sexual life than those without partners. Faecal, but not urinary, incontinence was associated with poorer sexual function and less satisfaction. Forty-nine percent of subjects indicated that the sexual education they received at puberty was useful; however, 32% lacked knowledge about their sexual functioning with regard to their disability.CONCLUSION: There is a need for further sexual education and counselling for adults with spina bifida in order to improve their sexuality and quality of life.
KW - Adult
KW - Cohort Studies
KW - Counseling
KW - Denmark
KW - Disability Evaluation
KW - Female
KW - Humans
KW - Male
KW - Quality of Life
KW - Questionnaires
KW - Sex Education
KW - Sexual Behavior
KW - Sexuality
KW - Spinal Dysraphism
KW - Young Adult
U2 - 10.2340/16501977-1863
DO - 10.2340/16501977-1863
M3 - Journal article
C2 - 25148270
VL - 46
SP - 891
EP - 897
JO - Journal of Rehabilitation Medicine
JF - Journal of Rehabilitation Medicine
SN - 1650-1977
IS - 9
ER -
ID: 137611215