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Assess, compare and enhance the status of Persons with Multiple Sclerosis (MS) in Europe : a European Register for MS. / Pugliatti, M; Eskic, D; Mikolcić, T; Pitschnau-Michel, D; Myhr, K-M; Sastre-Garriga, J; Otero, S; Wieczynska, L; Torje, C; Holloway, E; Rienhoff, O; Friede, T; Buckow, K; Ellenberger, D; Hillert, J; Glaser, Anne-Marie Søderberg; Flachenecker, P; Fuge, J; Schyns-Liharska, T; Kasilingam, E; Moretti, A; Thalheim, C; EUReMS Consortium ; Sørensen, Per Soelberg.
In:
Acta Neurologica Scandinavica. Supplementum, Vol. 126, No. 195, 2012, p. 24-30.
Research output: Contribution to journal › Journal article › Research › peer-review
Harvard
Pugliatti, M, Eskic, D, Mikolcić, T, Pitschnau-Michel, D, Myhr, K-M, Sastre-Garriga, J, Otero, S, Wieczynska, L, Torje, C, Holloway, E, Rienhoff, O, Friede, T, Buckow, K, Ellenberger, D, Hillert, J, Glaser, A-MS, Flachenecker, P, Fuge, J, Schyns-Liharska, T, Kasilingam, E, Moretti, A, Thalheim, C, EUReMS Consortium
& Sørensen, PS 2012, '
Assess, compare and enhance the status of Persons with Multiple Sclerosis (MS) in Europe: a European Register for MS',
Acta Neurologica Scandinavica. Supplementum, vol. 126, no. 195, pp. 24-30.
https://doi.org/10.1111/ane.12024APA
Pugliatti, M., Eskic, D., Mikolcić, T., Pitschnau-Michel, D., Myhr, K-M., Sastre-Garriga, J., Otero, S., Wieczynska, L., Torje, C., Holloway, E., Rienhoff, O., Friede, T., Buckow, K., Ellenberger, D., Hillert, J., Glaser, A-M. S., Flachenecker, P., Fuge, J., Schyns-Liharska, T.
, ... Sørensen, P. S. (2012).
Assess, compare and enhance the status of Persons with Multiple Sclerosis (MS) in Europe: a European Register for MS.
Acta Neurologica Scandinavica. Supplementum,
126(195), 24-30.
https://doi.org/10.1111/ane.12024Vancouver
Pugliatti M, Eskic D, Mikolcić T, Pitschnau-Michel D, Myhr K-M, Sastre-Garriga J et al.
Assess, compare and enhance the status of Persons with Multiple Sclerosis (MS) in Europe: a European Register for MS.
Acta Neurologica Scandinavica. Supplementum. 2012;126(195):24-30.
https://doi.org/10.1111/ane.12024Author
Pugliatti, M ; Eskic, D ; Mikolcić, T ; Pitschnau-Michel, D ; Myhr, K-M ; Sastre-Garriga, J ; Otero, S ; Wieczynska, L ; Torje, C ; Holloway, E ; Rienhoff, O ; Friede, T ; Buckow, K ; Ellenberger, D ; Hillert, J ; Glaser, Anne-Marie Søderberg ; Flachenecker, P ; Fuge, J ; Schyns-Liharska, T ; Kasilingam, E ; Moretti, A ; Thalheim, C ; EUReMS Consortium ; Sørensen, Per Soelberg. / Assess, compare and enhance the status of Persons with Multiple Sclerosis (MS) in Europe : a European Register for MS. In: Acta Neurologica Scandinavica. Supplementum. 2012 ; Vol. 126, No. 195. pp. 24-30.
Bibtex
@article{d922bac042834b2199990f73d5de7e17,
title = "Assess, compare and enhance the status of Persons with Multiple Sclerosis (MS) in Europe: a European Register for MS",
abstract = "Persons with multiple sclerosis (PwMS) experience health-related quality of life (HRQoL) problems greatly differing across Europe, and the European Union (EU) faces deep inequalities in MS management from country to country. Through the establishment of a European MS Register (EUReMS), an effective action is proposed to improve the overall knowledge on MS and support effective intervention programmes at EU and national political level. EUReMS aims to achieve consensus on its mission and vision, to define existing data providers, to develop models driving future MS health policies and research, to develop an information technology (IT) infrastructure for a data set, to develop a European shared governance and to secure providers' data provision into EUReMS.",
author = "M Pugliatti and D Eskic and T Mikolci{\'c} and D Pitschnau-Michel and K-M Myhr and J Sastre-Garriga and S Otero and L Wieczynska and C Torje and E Holloway and O Rienhoff and T Friede and K Buckow and D Ellenberger and J Hillert and Glaser, {Anne-Marie S{\o}derberg} and P Flachenecker and J Fuge and T Schyns-Liharska and E Kasilingam and A Moretti and C Thalheim and S{\o}rensen, {Per Soelberg} and S{\o}rensen, {Per Soelberg}",
note = "{\textcopyright} 2012 John Wiley & Sons A/S.",
year = "2012",
doi = "10.1111/ane.12024",
language = "English",
volume = "126",
pages = "24--30",
journal = "Acta Neurologica Scandinavica, Supplement",
issn = "0065-1427",
publisher = "Wiley-Blackwell",
number = "195",
}
RIS
TY - JOUR
T1 - Assess, compare and enhance the status of Persons with Multiple Sclerosis (MS) in Europe
T2 - a European Register for MS
AU - Pugliatti, M
AU - Eskic, D
AU - Mikolcić, T
AU - Pitschnau-Michel, D
AU - Myhr, K-M
AU - Sastre-Garriga, J
AU - Otero, S
AU - Wieczynska, L
AU - Torje, C
AU - Holloway, E
AU - Rienhoff, O
AU - Friede, T
AU - Buckow, K
AU - Ellenberger, D
AU - Hillert, J
AU - Glaser, Anne-Marie Søderberg
AU - Flachenecker, P
AU - Fuge, J
AU - Schyns-Liharska, T
AU - Kasilingam, E
AU - Moretti, A
AU - Thalheim, C
AU - EUReMS Consortium
AU - Sørensen, Per Soelberg
N1 - © 2012 John Wiley & Sons A/S.
PY - 2012
Y1 - 2012
N2 - Persons with multiple sclerosis (PwMS) experience health-related quality of life (HRQoL) problems greatly differing across Europe, and the European Union (EU) faces deep inequalities in MS management from country to country. Through the establishment of a European MS Register (EUReMS), an effective action is proposed to improve the overall knowledge on MS and support effective intervention programmes at EU and national political level. EUReMS aims to achieve consensus on its mission and vision, to define existing data providers, to develop models driving future MS health policies and research, to develop an information technology (IT) infrastructure for a data set, to develop a European shared governance and to secure providers' data provision into EUReMS.
AB - Persons with multiple sclerosis (PwMS) experience health-related quality of life (HRQoL) problems greatly differing across Europe, and the European Union (EU) faces deep inequalities in MS management from country to country. Through the establishment of a European MS Register (EUReMS), an effective action is proposed to improve the overall knowledge on MS and support effective intervention programmes at EU and national political level. EUReMS aims to achieve consensus on its mission and vision, to define existing data providers, to develop models driving future MS health policies and research, to develop an information technology (IT) infrastructure for a data set, to develop a European shared governance and to secure providers' data provision into EUReMS.
U2 - 10.1111/ane.12024
DO - 10.1111/ane.12024
M3 - Journal article
C2 - 23278653
VL - 126
SP - 24
EP - 30
JO - Acta Neurologica Scandinavica, Supplement
JF - Acta Neurologica Scandinavica, Supplement
SN - 0065-1427
IS - 195
ER -
