How are patients with chronic urticaria interested in using information and communication technologies to guide their healthcare? A UCARE study

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningfagfællebedømt


  • Ivan Cherrez-Ojeda
  • Emanuel Vanegas
  • Annia Cherrez
  • Miguel Felix
  • Karsten Weller
  • Markus Magerl
  • Rasmus Robin Maurer
  • Valeria L. Mata
  • Alicja Kasperska-Zajac
  • Agnieszka Sikora
  • Daria Fomina
  • Elena Kovalkova
  • Kiran Godse
  • Nimmagadda Dheeraj Rao
  • Maryam Khoshkhui
  • Sahar Rastgoo
  • Roberta FJ. Criado
  • Mohamed Abuzakouk
  • Deepa Grandon
  • Martijn B. A. Van Doorn
  • Solange Oliveira Rodrigues Valle
  • Eduardo Magalhaes De Souza Lima
  • German D. Ramon
  • Edgar E. Matos Benavides
  • Andrea Bauer
  • Ana M. Gimenez-Arnau
  • Emek Kocaturk
  • Carole Guillet
  • Jose Ignacio Larco
  • Zuo-Tao Zhao
  • Michael Makris
  • Carla Ritchie
  • Paraskevi Xepapadaki
  • Luis Felipe Ensina
  • Sofia Cherrez
  • Marcus Maurer

Background: Patients with chronic urticaria (CU) are increasingly using information and communication technologies (ICTs) to manage their health. What CU patients expect from ICTs and which ICTs they prefer remains unknown. We assessed why CU patients use ICTs, which ones they prefer, and what drives their expectations and choices. Methods: In this cross-sectional study, 1841 patients across 17 countries were recruited at UCAREs (Urticaria Centers of Reference and Excellence). Patients with CU who were >12 years old completed a 23-item questionnaire. Results: Most patients were interested in receiving disease information (87.3%), asking physicians about CU (84.1%), and communicating with other patients through ICTs (65.6%). For receiving disease information, patients preferred one-to-one and one-to-many ICTs, especially web browsers. One-to-one ICTs were also the ICTs of choice for asking physicians about urticaria and for communicating with other patients, and e-mail and WhatsApp were the preferred ICTs, respectively. Many-to-many ICTs such as Facebook, Instagram, LinkedIn, and Twitter were least preferred for all 3 purposes. Living in rural areas and higher education were linked to higher odds of being interested in receiving disease information, asking physicians, and communicating with patients through ICTs. Conclusions: Most patients and especially patients with higher education who live in rural areas are interested in using ICTs for their healthcare, but prefer different ICTs for different purposes, ie, web browsers for obtaining information, e-mail for asking physicians, and WhatsApp for communicating with other patients. Our findings may help to improve ICTs for CU.

TidsskriftWorld Allergy Organization Journal
Udgave nummer6
Antal sider12
StatusUdgivet - 2021

ID: 274277763