How are patients with chronic urticaria interested in using information and communication technologies to guide their healthcare? A UCARE study

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How are patients with chronic urticaria interested in using information and communication technologies to guide their healthcare? A UCARE study. / Cherrez-Ojeda, Ivan; Vanegas, Emanuel; Cherrez, Annia; Felix, Miguel; Weller, Karsten; Magerl, Markus; Maurer, Rasmus Robin; Mata, Valeria L.; Kasperska-Zajac, Alicja; Sikora, Agnieszka; Fomina, Daria; Kovalkova, Elena; Godse, Kiran; Rao, Nimmagadda Dheeraj; Khoshkhui, Maryam; Rastgoo, Sahar; Criado, Roberta FJ.; Abuzakouk, Mohamed; Grandon, Deepa; Van Doorn, Martijn B. A.; Valle, Solange Oliveira Rodrigues; Lima, Eduardo Magalhaes De Souza; Thomsen, Simon Francis; Ramon, German D.; Benavides, Edgar E. Matos; Bauer, Andrea; Gimenez-Arnau, Ana M.; Kocaturk, Emek; Guillet, Carole; Larco, Jose Ignacio; Zhao, Zuo-Tao; Makris, Michael; Ritchie, Carla; Xepapadaki, Paraskevi; Ensina, Luis Felipe; Cherrez, Sofia; Maurer, Marcus.

I: World Allergy Organization Journal, Bind 14, Nr. 6, 100542, 2021.

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningfagfællebedømt

Harvard

Cherrez-Ojeda, I, Vanegas, E, Cherrez, A, Felix, M, Weller, K, Magerl, M, Maurer, RR, Mata, VL, Kasperska-Zajac, A, Sikora, A, Fomina, D, Kovalkova, E, Godse, K, Rao, ND, Khoshkhui, M, Rastgoo, S, Criado, RFJ, Abuzakouk, M, Grandon, D, Van Doorn, MBA, Valle, SOR, Lima, EMDS, Thomsen, SF, Ramon, GD, Benavides, EEM, Bauer, A, Gimenez-Arnau, AM, Kocaturk, E, Guillet, C, Larco, JI, Zhao, Z-T, Makris, M, Ritchie, C, Xepapadaki, P, Ensina, LF, Cherrez, S & Maurer, M 2021, 'How are patients with chronic urticaria interested in using information and communication technologies to guide their healthcare? A UCARE study', World Allergy Organization Journal, bind 14, nr. 6, 100542. https://doi.org/10.1016/j.waojou.2021.100542

APA

Cherrez-Ojeda, I., Vanegas, E., Cherrez, A., Felix, M., Weller, K., Magerl, M., Maurer, R. R., Mata, V. L., Kasperska-Zajac, A., Sikora, A., Fomina, D., Kovalkova, E., Godse, K., Rao, N. D., Khoshkhui, M., Rastgoo, S., Criado, R. FJ., Abuzakouk, M., Grandon, D., ... Maurer, M. (2021). How are patients with chronic urticaria interested in using information and communication technologies to guide their healthcare? A UCARE study. World Allergy Organization Journal, 14(6), [100542]. https://doi.org/10.1016/j.waojou.2021.100542

Vancouver

Cherrez-Ojeda I, Vanegas E, Cherrez A, Felix M, Weller K, Magerl M o.a. How are patients with chronic urticaria interested in using information and communication technologies to guide their healthcare? A UCARE study. World Allergy Organization Journal. 2021;14(6). 100542. https://doi.org/10.1016/j.waojou.2021.100542

Author

Cherrez-Ojeda, Ivan ; Vanegas, Emanuel ; Cherrez, Annia ; Felix, Miguel ; Weller, Karsten ; Magerl, Markus ; Maurer, Rasmus Robin ; Mata, Valeria L. ; Kasperska-Zajac, Alicja ; Sikora, Agnieszka ; Fomina, Daria ; Kovalkova, Elena ; Godse, Kiran ; Rao, Nimmagadda Dheeraj ; Khoshkhui, Maryam ; Rastgoo, Sahar ; Criado, Roberta FJ. ; Abuzakouk, Mohamed ; Grandon, Deepa ; Van Doorn, Martijn B. A. ; Valle, Solange Oliveira Rodrigues ; Lima, Eduardo Magalhaes De Souza ; Thomsen, Simon Francis ; Ramon, German D. ; Benavides, Edgar E. Matos ; Bauer, Andrea ; Gimenez-Arnau, Ana M. ; Kocaturk, Emek ; Guillet, Carole ; Larco, Jose Ignacio ; Zhao, Zuo-Tao ; Makris, Michael ; Ritchie, Carla ; Xepapadaki, Paraskevi ; Ensina, Luis Felipe ; Cherrez, Sofia ; Maurer, Marcus. / How are patients with chronic urticaria interested in using information and communication technologies to guide their healthcare? A UCARE study. I: World Allergy Organization Journal. 2021 ; Bind 14, Nr. 6.

Bibtex

@article{7d2f70f9637845649b3a0fc48d4dd27a,
title = "How are patients with chronic urticaria interested in using information and communication technologies to guide their healthcare?: A UCARE study",
abstract = "Background: Patients with chronic urticaria (CU) are increasingly using information and communication technologies (ICTs) to manage their health. What CU patients expect from ICTs and which ICTs they prefer remains unknown. We assessed why CU patients use ICTs, which ones they prefer, and what drives their expectations and choices. Methods: In this cross-sectional study, 1841 patients across 17 countries were recruited at UCAREs (Urticaria Centers of Reference and Excellence). Patients with CU who were >12 years old completed a 23-item questionnaire. Results: Most patients were interested in receiving disease information (87.3%), asking physicians about CU (84.1%), and communicating with other patients through ICTs (65.6%). For receiving disease information, patients preferred one-to-one and one-to-many ICTs, especially web browsers. One-to-one ICTs were also the ICTs of choice for asking physicians about urticaria and for communicating with other patients, and e-mail and WhatsApp were the preferred ICTs, respectively. Many-to-many ICTs such as Facebook, Instagram, LinkedIn, and Twitter were least preferred for all 3 purposes. Living in rural areas and higher education were linked to higher odds of being interested in receiving disease information, asking physicians, and communicating with patients through ICTs. Conclusions: Most patients and especially patients with higher education who live in rural areas are interested in using ICTs for their healthcare, but prefer different ICTs for different purposes, ie, web browsers for obtaining information, e-mail for asking physicians, and WhatsApp for communicating with other patients. Our findings may help to improve ICTs for CU.",
keywords = "Chronic urticaria, Information and communication technologies, Internet, e-mail, WhatsApp, PHYSICIANS, BURDEN, NEEDS",
author = "Ivan Cherrez-Ojeda and Emanuel Vanegas and Annia Cherrez and Miguel Felix and Karsten Weller and Markus Magerl and Maurer, {Rasmus Robin} and Mata, {Valeria L.} and Alicja Kasperska-Zajac and Agnieszka Sikora and Daria Fomina and Elena Kovalkova and Kiran Godse and Rao, {Nimmagadda Dheeraj} and Maryam Khoshkhui and Sahar Rastgoo and Criado, {Roberta FJ.} and Mohamed Abuzakouk and Deepa Grandon and {Van Doorn}, {Martijn B. A.} and Valle, {Solange Oliveira Rodrigues} and Lima, {Eduardo Magalhaes De Souza} and Thomsen, {Simon Francis} and Ramon, {German D.} and Benavides, {Edgar E. Matos} and Andrea Bauer and Gimenez-Arnau, {Ana M.} and Emek Kocaturk and Carole Guillet and Larco, {Jose Ignacio} and Zuo-Tao Zhao and Michael Makris and Carla Ritchie and Paraskevi Xepapadaki and Ensina, {Luis Felipe} and Sofia Cherrez and Marcus Maurer",
year = "2021",
doi = "10.1016/j.waojou.2021.100542",
language = "English",
volume = "14",
journal = "The World Allergy Organization Journal",
issn = "1939-4551",
publisher = "BioMed Central Ltd.",
number = "6",

}

RIS

TY - JOUR

T1 - How are patients with chronic urticaria interested in using information and communication technologies to guide their healthcare?

T2 - A UCARE study

AU - Cherrez-Ojeda, Ivan

AU - Vanegas, Emanuel

AU - Cherrez, Annia

AU - Felix, Miguel

AU - Weller, Karsten

AU - Magerl, Markus

AU - Maurer, Rasmus Robin

AU - Mata, Valeria L.

AU - Kasperska-Zajac, Alicja

AU - Sikora, Agnieszka

AU - Fomina, Daria

AU - Kovalkova, Elena

AU - Godse, Kiran

AU - Rao, Nimmagadda Dheeraj

AU - Khoshkhui, Maryam

AU - Rastgoo, Sahar

AU - Criado, Roberta FJ.

AU - Abuzakouk, Mohamed

AU - Grandon, Deepa

AU - Van Doorn, Martijn B. A.

AU - Valle, Solange Oliveira Rodrigues

AU - Lima, Eduardo Magalhaes De Souza

AU - Thomsen, Simon Francis

AU - Ramon, German D.

AU - Benavides, Edgar E. Matos

AU - Bauer, Andrea

AU - Gimenez-Arnau, Ana M.

AU - Kocaturk, Emek

AU - Guillet, Carole

AU - Larco, Jose Ignacio

AU - Zhao, Zuo-Tao

AU - Makris, Michael

AU - Ritchie, Carla

AU - Xepapadaki, Paraskevi

AU - Ensina, Luis Felipe

AU - Cherrez, Sofia

AU - Maurer, Marcus

PY - 2021

Y1 - 2021

N2 - Background: Patients with chronic urticaria (CU) are increasingly using information and communication technologies (ICTs) to manage their health. What CU patients expect from ICTs and which ICTs they prefer remains unknown. We assessed why CU patients use ICTs, which ones they prefer, and what drives their expectations and choices. Methods: In this cross-sectional study, 1841 patients across 17 countries were recruited at UCAREs (Urticaria Centers of Reference and Excellence). Patients with CU who were >12 years old completed a 23-item questionnaire. Results: Most patients were interested in receiving disease information (87.3%), asking physicians about CU (84.1%), and communicating with other patients through ICTs (65.6%). For receiving disease information, patients preferred one-to-one and one-to-many ICTs, especially web browsers. One-to-one ICTs were also the ICTs of choice for asking physicians about urticaria and for communicating with other patients, and e-mail and WhatsApp were the preferred ICTs, respectively. Many-to-many ICTs such as Facebook, Instagram, LinkedIn, and Twitter were least preferred for all 3 purposes. Living in rural areas and higher education were linked to higher odds of being interested in receiving disease information, asking physicians, and communicating with patients through ICTs. Conclusions: Most patients and especially patients with higher education who live in rural areas are interested in using ICTs for their healthcare, but prefer different ICTs for different purposes, ie, web browsers for obtaining information, e-mail for asking physicians, and WhatsApp for communicating with other patients. Our findings may help to improve ICTs for CU.

AB - Background: Patients with chronic urticaria (CU) are increasingly using information and communication technologies (ICTs) to manage their health. What CU patients expect from ICTs and which ICTs they prefer remains unknown. We assessed why CU patients use ICTs, which ones they prefer, and what drives their expectations and choices. Methods: In this cross-sectional study, 1841 patients across 17 countries were recruited at UCAREs (Urticaria Centers of Reference and Excellence). Patients with CU who were >12 years old completed a 23-item questionnaire. Results: Most patients were interested in receiving disease information (87.3%), asking physicians about CU (84.1%), and communicating with other patients through ICTs (65.6%). For receiving disease information, patients preferred one-to-one and one-to-many ICTs, especially web browsers. One-to-one ICTs were also the ICTs of choice for asking physicians about urticaria and for communicating with other patients, and e-mail and WhatsApp were the preferred ICTs, respectively. Many-to-many ICTs such as Facebook, Instagram, LinkedIn, and Twitter were least preferred for all 3 purposes. Living in rural areas and higher education were linked to higher odds of being interested in receiving disease information, asking physicians, and communicating with patients through ICTs. Conclusions: Most patients and especially patients with higher education who live in rural areas are interested in using ICTs for their healthcare, but prefer different ICTs for different purposes, ie, web browsers for obtaining information, e-mail for asking physicians, and WhatsApp for communicating with other patients. Our findings may help to improve ICTs for CU.

KW - Chronic urticaria

KW - Information and communication technologies

KW - Internet

KW - e-mail

KW - WhatsApp

KW - PHYSICIANS

KW - BURDEN

KW - NEEDS

U2 - 10.1016/j.waojou.2021.100542

DO - 10.1016/j.waojou.2021.100542

M3 - Journal article

C2 - 34141048

VL - 14

JO - The World Allergy Organization Journal

JF - The World Allergy Organization Journal

SN - 1939-4551

IS - 6

M1 - 100542

ER -

ID: 274277763