Establishment of a regional Danish database for patients with a stoma

Research output: Contribution to journalJournal articlepeer-review

  • Anne Kjærgaard Danielsen
  • Bo Marcel Christensen
  • Mortensen, Jann
  • Lise Lotte Voergaard
  • Per Herlufsen
  • L Balleby

AIM: To present the Danish Stoma Database Capital Region with clinical variables related to stoma creation including colostomy, ileostomy and urostomy.

METHOD: The stomatherapists in the Capital Region of Denmark developed a database covering patient identifiers, interventions, conditions, short-term outcome, long-term outcome and known major confounders. The completeness of data was validated against the Danish National Patient Register.

RESULTS: In 2013, five hospitals included data from 1123 patients who were registered during the year. The types of stomas formed from 2007 to 2013 showed a variation reflecting the subspecialization and surgical techniques in the centres. Between 92 and 94% of patients agreed to participate in the standard programme aimed at handling of the stoma and more than 88% of patients having planned surgery had the stoma site marked pre-operatively.

CONCLUSION: The database is fully operational with high data completeness and with data about patients with a stoma from before surgery up to 12 months after surgery. The database provides a solid basis for professional learning, clinical research and benchmarking.

Original languageEnglish
JournalColorectal Disease
Volume17
Issue number1
Pages (from-to)O27–O33
Number of pages7
ISSN1462-8910
DOIs
Publication statusPublished - Jan 2015

    Research areas

  • Databases, Factual, Denmark, Enterostomy, Female, Humans, Male, Surgical Stomas, Urologic Surgical Procedures

ID: 156086368